An early discovery in pursuing whole-body movement as the principle therapy for increasing my range of motion, re-connecting body and mind, and integrating Primitive Reflexes, was the importance of holding something in my hands as part and parcel of the therapy, thereby enhancing the Applied Neuroplasticity and Somatic Experiencing benefits of movement.
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Of all the therapies and modalities we’ve discussed here, I believe the most beneficial overall for progressive symptom reduction and movement recovery are Dance based. Here we define Dance Therapy broadly and simply as “moving to music or a beat”
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Playing with balloons helped me re-discover much more slow, fluid and graceful movement. I believe that this type of controlled movement exercise could be very beneficial - even more so than playing with balls.
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The purposes of this article, which I will endeavour to keep updated, is to act as a central resource of information on light therapy and its applications to Parkinson's Disease.
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In this article, I would like to return to this topic, and concentrate this time on that primitive, reptilian branch of the Vagus Nerve, and its potentially central role in Parkinson's Disease.
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The contrast to two years ago is quite stark. Back then I was literally near-Death and dying fast. Then, in my Death Feigning or "off" state, I would be in a much deeper Freeze, with more "rigor mortis" (rigidity). I was literally a zombie. Now I am much more functional - half-alive instead of near-dead - while symptomatic, unless having a really bad day. Even when the drugs switched me on, back then, it was not into full Aliveness, but into another half-dead, unfeeling, empty state - that of permanent Fight-Flight which I had pre-existed all in my life. Moreover, I was taking so many drugs that my movement (and emotions) were uncontrolled, I would go over to a state of dyskinesia which could be worse than the symptoms. Some of the drugs (ropenirole) I was on then actually made my Fight-Flight much, much worse than before.
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Tennis seems to be the perfect exercise to help PD - the hand-eye coordination, sudden quick movements, the thinking process used to execute a shot. I now play most days - mainly doubles - for up to three hours. Luckily, our club has a lot of members so there’s never a shortage of people to play with. And the strange, but rewarding part is that my game is getting better! Four years ago I would never have dreamt that I would be winning club competitions and playing matches for my club in the Leicestershire league. I started playing tennis shortly before being diagnosed in my early 50s, enjoying coaching sessions and playing a couple of times a week with my children.
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This article explores how I've found that persistent and targeted "neural exercises" can progressively reduce various symptoms/problems of Parkinson's Disease, through neuroplastic processes. In particular, here I will demonstrate specific neural exercises, and how I have significantly improved my own quality of life through pursuing these persistently over time, via entries from my video diary which are interspersed through the article.
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Many people with PD (PwP), and caregivers will also be well aware of this, often encounter an almost constant chatter of busy thoughts in their own heads. This inner voice can speak in undertones of self-doubt and guilt, but also can be constantly seeking to blame others, marshalling arguments and self-justifications. These thoughts can go round and round like a tape stuck on a loop, and be very difficult to break out of. Indeed, PwP can become irritable when someone seeks to interrupt these thoughts. These anecdotal experiences have now been backed by science too. A recent article in "Nature",
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I learned about the connection between the eyes/vision and movement of the body in an online course run by my friend and "Wisdom Coach" Cheryl Townsley, where a tutorial showed how, looking up or down with the eyes (not via movement of the head) creates an immediate increase in the range of specific arm/shoulder motions. I could quickly check this was indeed true for myself. Indeed, the connection between eye and body movement is so important that professional athletes are being trained in these types of techniques, and are given specific eye exercises to improve sports performance!
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Movement in humans is a learned behaviour. We learn to move mainly by watching other people go through the motions: we are not born with any innate ability to move around independently. As babies and toddlers, we spend years watching and mimicking our parents, programming our brains with the data they provide. Our brain knows all about walking before we even attempt to walk ourselves, through unconscious observation. Later, we start to get the hang of it through intensive practice, and especially by falling down and making mistakes. Encouragement and supportive instruction from adults help us to keep practising until we have, at last, developed the ability to move independently. But imagine, if as we started to trying to walk, when we fell over on the second attempt, our parents said "oh dear, walking is not for you"! Unfortunately, this is precisely the message people with PD tend to be given.
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I have done a lot of hand/finger stimulation and experimented to optimize such exercises, in the spirit of Curiosity and Play. I've personally found significant benefit in pursuing this line of research. Indeed, I have managed to recover a lot of my independence and quality of life through hand and finger therapy, and I know just how much of a major part it has played in my own progressive symptom reduction.
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Indeed, the connections between eye health and general wellness are phenomenally strong, and so being mindful of how we use our eyes is a very important part of the jigsaw to progressive symptom reduction. Here, I will cover some of the things I've learned and what I've found actually helps me. Primary sources are Dr Eric Cobb of Zhealth Education, Cheryl Townsley - Wisdom Coach, Dr Joaquin Farias - developer of the Farias Technique for movement disorders, and Dr Stephen Porges - developer of the Polyvagal Theory.
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Recently, I described how the "Polyvagal Theory" of Dr Stephen Porges not only provides an elegant explanation for Parkinson's Disease and all its symptoms, but also suggests the actions we can take towards healing. Here, we return to this Nervous System (NS) dysfunction perspective of PD, and explore further how it informs us about what we can do to progressively decrease our symptoms.
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A friend suggested I write more about what Parkinson's Disease is like "on the inside". At the same time, I was researching the different senses of the human body, and the problems which can occur with these in PD. In this article, I attempt to to tie these two threads together.
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In this article, we explore, with the assistance of my friend and mentor, Cheryl Townsley, Health & Wisdom Coach, how the concepts of stress interruption and nervous system resetting help us understand why walking, cycling and dancing - exercises that inherently involve mobilization of the ankle joints - are so beneficial for People with Parkinson's Disease (PwPs), and why we need to keep practicing these regularly.
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Although the seven stage framework has been developed to describe acutely applied short duration stress, without any reference to PD, the very same framework also describes well the declining state of a PwPs body over time - if the disease is allowed to progress. Therefore, we believe that not only are PwPs permanently stuck in such stress response states, the degree of the stress that we are stuck in also moves through the stages as our situation is allowed to degenerated.
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I first discovered the Vagus Nerve (VN) when I was researching how Parkinson's Disease begins in the gut: "Braak's Hypothesis" of the disease states that the problem spreads from its origins in the digestive tract to the brain, using the Vagus Nerve as the conduit. My interest was further piqued when I read that people who had had their VN severed via a vagotomy - a surgical "solution" for stomach ulcers - appeared to have significantly less likelyhood of developing PD.
Read MoreFor People with Parkinson's, there is something very strange about the feedback between our brains/bodies and our immediate environment. The choice of clothes, in particular, can affect symptoms. In this article, I cover why consideration to clothing is an important part of living well with Parkinson's.
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Like many, people with Parkinson's, I had completely stopped listening to music some time before diagnosis. This "closing off" or withdrawal from the world of the senses is one of the running themes which I have found in talking to very many people with Parkinson's. But whenever I see people with other neurological conditions like Alzheimer's on the TV, invariably they seem to be existing in silence, and have forgotten the music that one made them come to life. Even quite recently, I could not recall seeing people with such conditions, as shown in the reality of their lives, with music even playing in the background, and certainly never saw them with a personal choice of music, carefully chosen to stir all sorts of memories, being played loud directly in their ears via digital headphones. Thankfully, the profound impact of music on people with neurological illnesses, such as Alzheimer's and Parkinson's is now coming to the fore.
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