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Progressive Symptom Reduction Strategies for Parkinson's Disease
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Fascia Decompression and Parkinson's Disease

February 8, 2023

Guest article by Deanna Hansen, founder of Fluid Isometrics and Block Therapy, author of the books Fascia Decompression: The Missing Link in Self-Care & Unblock Your Body: How Decompressing Your Fascia is the Missing Link in Healing.

Why the Fascia needs to be addressed to manage and potentialLy reverse the effects oF PD

I have been working in the fascia system for twenty three years and have come to understand this system intimately. Spending over 60,000 hours working on both patients, and myself, the changes I have seen from Fascia Decompression, is helping people all over the world.

Firstly, I have a different understanding of what this system is all about. I see the fascia as the surface membrane of each cell, connected to every other cell. It is the communication between all cells and creates both stability and mobility within. If we treat this system and provide it with what it requires for lifelong health through Fascia Decompression, pain, aging and dis-ease take on new meanings.

We are continually under the influence of external forces, gravity being the most impactful. Essentially, as we age, the body compresses – it becomes shorter and wider. As we are asymmetrical due to the overuse of our dominant side, we literally spiral down toward the earth, either to the left or the right depending on several factors. As energy moves in waves and spirals (Fibonacci sequence), this is the pattern of collapse within the layers of fascia.

As we begin to tip off balance, like a spider spinning its web, the fascia reaches out to grip onto anything in its path to create stability, even to bone. This is where the real issues arise as these grips will adhere with a force up to 2000 pounds per square inch. The seal onto bone is magnetic and, in my experience, is the true root cause of all suffering.

These grips act like barricades. Flow within the body becomes blocked, causing a lack of nutrition to cells, as well as creating an environment that is congested. Cells starve of their vital energy and the tissue becomes acidic. Depending on the cells involved will dictate the symptoms that a person has.

I have had the opportunity to work with clients all over the world, with every condition known, including Parkinson’s Disease. I have also seen positive results beyond simply managing their symptoms, but also seeing improvements. When looking at the body, a holistic approach needs to be taken as every cell is interconnected. What happens in the legs, arms and scalp, for example, has a direct effect on the rest of the body.

My system is comprised of three pillars:

  • Creating Space;

  • Inflating Space;

  • Maintaining Space.

Creating space

When a body is perfectly aligned, there is optimal space within and around each cell. This provides easy passage for nutrients to enter the cell, and for waste to be carried away. If there is flow, the cells can function optimally to keep the body healthy. It is when we lose the internal space that adhesions develop, thereby blocking flow.

The combination of gravity, with unconscious posture and incorrect breathing, create compression within, which decreases the internal space. As we age in a forward, rotational direction, adhesions develop to attempt to stop the body from its descent, which ultimately block the flow of all systems within. This also creates a body that has an overall colder temperature as circulation is required for cells to be at their optimal temperature of 98.6 degrees Fahrenheit.

Fascia Decompression puts the space back into the body that time has taken away. Using either a practitioner’s hands (Fluid Isometrics), or the self-care version (Block Therapy), adhesions that develop between the layers of fascia are melted. This is accomplished though the combination of pressure over time which creates heat to the area, combined with training proper diaphragmatic breathing, which is like turning on the body’s furnace. This provides external and internal heating for greatest efficiency.

Inflating space

Oxygen is the most important nutrient the cell requires to optimally function. When the body is depleted, it functions only to survive, not to thrive. Diaphragmatic breathing can feed the body up to six times the oxygen, so to strengthen this action is the most important practice one can do for overall health and well-being.

The natural reaction when confronted with pain, fear or stress, is to hold the breath. As we are designed to survive, we will still pull air into the lungs, but the secondary muscles kick in for this purpose. As I mentioned that diaphragmatic breathing is like turning on the body’s furnace, breathing through the muscles of the upper chest is like putting a space heater in one room. Only that room will become warm.

Even though many are sharing exercises to strengthen this muscle, the challenge lies in the adhesions that form around the ribcage. As mentioned above, fascia grips and adheres to bone with a force up to 2000 pounds per square inch. If you haven’t been trained to be a conscious breather lifelong, the diaphragm muscle becomes weak. As this is the foundation of the ribcage, the contents above put pressure on this weakened foundation and cause it to collapse into the core. This will displace the internal organs, cause a ballooning belly and create a toxic environment in the gut from inflammation that becomes stagnant.

Through the combined actions of creating space as mentioned above, with the focus of diaphragmatic breathing, which is like turning on the body’s furnace, we effectively melt the adhesions that have locked the ribcage out of alignment. Diaphragmatic breathing provides the opportunity to draw the air deeply into the lungs, where the majority of the alveoli (oxygen receptor sites), reside. This allows for optimal absorption of oxygen into the blood so to feed all cells in the body.

Cells fully oxygenated are like a blown-up balloon -- round, full and almost defies gravity. Cells depleted in oxygen would be like the balloon with less air. It becomes wrinkled, accumulates dirt and debris in the creases and becomes heavy. This is what aging cells look like. Gravity also has a hold on dense tissue, over time, speeding up the body descent as more time accumulates.

In addition, it has been proven that 84% of weight loss comes through proper exhalation due to its detoxifying effects. Breathing through the muscles of the upper chest, as most do, keeps the body starving for oxygen, and toxic.

Maintaining space

Every cell in the body has its correct alignment, and if they are at home, there is optimal space. When we don’t have conscious awareness of postural foundations, cells migrate away from their natural resting place under the influences already mentioned, creating adhesions to keep the body from tipping over.

There are three main postural foundation that need to be observed and strengthened;

  • The Root;

  • The Diaphragm;

  • The Tongue.

The root

The body is like a building. If the foundation is weak and not aligned, everything up the chain is pulled into the system of collapse. Also, because the calves and feet are furthest from the diaphragm, this is where the tissue is most frozen. This is the most impactful cause site in the body. Even if you have issues with your shoulders, or head and neck, if you only work in that area, every time you take a step you will be pulled back into this system of collapse. Supporting our foundation is key to maintaining a body where the cells are aligned.

Rooting is the action necessary to keep the lower body aligned. The feet should be directly under the hip joints, feet pointing straight ahead with the knees slightly bent. The kneecap should be aligned over the second toe. Then, the action of squeezing the anus is required to bring support to the posterior aspect of the perineum. This is what allows the body to bear 60% of the bodyweight on the heels, compared to the average 80% on the balls of the feet as seen in most people. This provides the proper foundation for everything up the chain, most notably, the ability for the diaphragm to move up and down in the core fully and completely.

The diaphragm

We have mentioned the significance of working this muscle, but to add, when breathing from this space, the diaphragm moves down to the feet with the inhalation, and up into the chest with the exhalation. It is the exhalation that is the counter force to gravity. When this muscle moves freely, the abdominal organs, heart and lungs are given a continual massage to keep them heated. This assists with optimal functioning as they are given energy with every breath, compared to when the diaphragm is weak and the contents above collapse into the core space.

In addition, breathing from this space also activates the parasympathetic nervous system, bringing the body to a state of relaxation. Breathing with the muscles of the upper chest creates internal tension and puts you into a chronic sympathetic state of flight or flight, exhausting the adrenals.

The Tongue

The tongue muscle functions not only to talk and chew, but also to support the weight of the head. When it is weak, it allows the collapse of the ribcage to draw the head forward, strangling the carotid arteries, negatively affecting the thyroid gland, and blocking the major lymphatic drainage sites under the clavicles.

When properly aligned, the surface of the tongue rests at the roof of the mouth. This helps to prevent the forward head posture that occurs with aging, keeping the brain properly positioned in the skull. Shrinking of the frontal lobe occurs with ageing, which this helps to prevent. As well, the flow to and from the brain stays optimal as there is no compression on the channels for flow if kept in proper alignment.

These 3 pillars – Creating Space, Inflating Space and Maintaining Space, work in concert to ensure that cells migrate back to where they should be positioned, and once there, maintain the internal space for fluids and energy to flow freely through the body.

Benefits for people with Parkinson’s disease

The main symptoms of Parkinson’s -- tremors, muscle rigidity, weakness, collapsing posture, trouble sleeping…, all occur when there are adhesions that block the flow of fluids and energy to the cells. The most important thing to understand is that without the proper diaphragmatic breath, the body is simply depleted and can’t perform.

Pain, fear and stress cause you to reactively hold the breath. If this becomes a habit, then the secondary muscles of the upper chest take over, drastically limiting the energy for the cells to work. For some, this may result from a physical trauma, for others, it can be an emotional trauma that triggered this response. Either way, something caused the diaphragm to become almost paralyzed, forcing the body to compensate.

Tremors occur when the cells lose integration. This response, like shivering, is the body trying to increase energy to the area. The issue is the weakened diaphragm. Simply doing breathing exercises won’t change this as the adhesions have magnetically sealed the diaphragm out of alignment, causing it to be frozen, forcing the secondary muscles of the upper chest to kick in. There is not enough energy in these muscles to move the blood to the extremities, and as gravity continually adds more collapse to the body, eventually the tremors fall away to rigidity, and the body continues to collapse in and on itself.

My system is designed to melt the adhesions, activate the diaphragm and teach proper postural foundations to undo what time has done and to integrate cells back to life. Having had the opportunity to work with people with Parkinson’s Disease, I have seen improvements in their quality of life. The pace that this work can be applied is dependent on each individual, as there will be a detoxifying effect in the body, and if meds have been taken for years, you need to approach the body at a pace that works for the individual.

This work is self-administered and done in the comfort of your own home. This allows the individual to moderate the positions and the amount of time spent each day to suit their needs. It is also important to understand the cause sites that are holding the body in its rigid state, and to work on melting the adhesions in those areas.

The calves and feet, hands and forearms and scalp are all areas that need lots of attention. As they are the furthest from the diaphragm, they will be most frozen and will be a major holding pattern for everyone. My system is designed to teach people how to approach their body to receive the benefits of melting the adhesions blocking flow, and to activate the diaphragm so new habits can be integrated, and continual positive change can occur.

In my experience, I have seen that if progress is continual, then there is excitement and follow through. This work creates the opportunity for change to be immediate, and continual. Like melting a block of ice, you can’t force it to melt all at once, it will melt at the pace where the energy is enough to change the structure of ice to water. Similarly, you can’t activate all cells in the body in a moment. However, you can sequentially dive deeper through the layers, melting the adhesions along the way, strengthening the breath to increase oxygen in the blood, and build stronger foundations to support the journey back to proper cell alignment.

For as complicated as this disease can be, this approach is simple, safe and continual with the benefits. As more energy is added to the body, there is more repair and integration. I fully believe that all symptoms can be managed, and that for many who adopt this as a lifestyle, can see continual progress to improve quality of life and potentially even reverse it.

Testimonials

Gary Sharpe, Out-Thinking Parkinson’s

I started using Block Therapy just over three years ago. I noticed immediate benefits, including the resolution of any constipation, and the raising of my body temperature. I hadn’t realized how cold my body was, and the impacts this was having on symptoms, so the initial “hot flushes” which the Block Therapy belly positioned induced was a surprise, and a revelation. I also hadn’t realized how frozen my diaphragm was, and how disconnected I was from it. I could neither sense my diaphragm, nor move it voluntarily. I can now, perhaps for the first time in my life, breath diaphragmatically, and feel, sense, and move my diaphragm.

I initially found I could only tolerate small amounts of fascia decompression per day, just two or three positions of the Block Therapy work. One thing that fascia decompression can do is release toxins that have become stored and sequestered in the body. As someone who is stuck in the freeze stress response, my body was a very poor eliminator of toxins such as heavy metals - as confirmed by a mineral analysis of my hair - because I wasn’t able to spend enough time in the calm and relaxed states that are required for detoxification to take place. So, by the time I started practicing fascia decompression, my body was very toxified according to the hair mineral test. Since my system could not detoxify, all it could do was sequester the toxins away in my fascia for safe keeping, preventing harm to the organs.

Thus, I found if I do too much Block Therapy per day, it releases too many toxins into my body at once, faster than I can eliminate and excrete them. This overwhelm is called a “healing crisis” by Deanna. For me it manifests as a temporary increase in symptoms. As time has gone on, and I have released and eliminated a great deal of the toxins, I am able to tolerate doing more and more fascia decompression a day, and so the process is continually accelerating.

At the time of starting the practice, by far my worst and most debilitating symptom was the dystonia - high level of pain, stiffness, rigidity - in my right neck and shoulder, which would come back every time a dose of drugs wore off. When this I happened, I couldn’t stand up for long, as it felt like I was being crushed to the ground, as if someone had turned up the gravity. I couldn’t sit down for long either, because when in the seated positions, the constrictions in my neck felt like the blood supply to my brain was being cut off, which made me feel like a zombie, and made me panic.  

Due to the debilitating pain and neck issues, each time the drugs wore off was very frightening and traumatic. All I could do was lay on the bed with my head propped up so much that my chin was on my chest, as this was the only position which brought some modicum of relief. At that time, this wear-off was occurring about 6 times a day, lasting one to two hours or more each time.

Since the neck and shoulder issues were so problematic, I suspected that some serious problem with the fascia in that area had developed over time, or it had been damaged somehow. As I could only manage two or three Block Therapy positions a day, without incurring a healing crisis, I concentrated my fire there, and mainly just blocked the side of my neck, sternum, and my clavicle region. The images below show the photo record of my progress of doing this consistently for the first year of my fascia decompression practice. I think these images speak for themselves.

In the photo records from the side, you can see the vast improvement in my posture, but especially the space that opens in my neck. See how my chin was initially below the levels of my shoulders. The relaxation and the relief in my shoulders is visceral and tangible in the images from the back. It was also very noticeable internally by me, in terms of a marked decrease in the pain and dystonia in my neck. The effect was noticeable by other people too. For example, during this time, one person I saw daily asked me “are you getting taller?”

In the second year, I added in some additional positions, which bought additional relief, including the side of the torso under the armpit, and the outside of the deltoid. I added in blocking the back of my neck and the back of shoulders, which allowed me to begin to be able to lie down without having to prop up my head so much that my chin was on my chest, yet not feel like the oxygen supply to my brain was being cut off.

I began to also supplement the Block Therapy with my hands, applying pressure with my fingers, and moving in small, slow spirals like Deanna teaches. Indeed, I found that using the fingers this way is a great self-assessment tool. When starting to apply fascia decompression to a new area, initially the skin will not move with the fingers, but is stuck down firmly to the underling bone. As you progress, the skin begins to become free from the bone, and starts to glide smoothly with fingers as you make the spiral movements, so the results are tangible and measurable.

In particular, the hands-on approach was for me the safest and gentlest way to release my rib cage. Initially the skin was utterly stuck down on to the ribs, but now it glides nicely and can be pulled or pinched away from the ribs completely.

In the third year of my practice Deanna released a “hair health” class, which is designed to release the scalp from the skull, through a combination of applying the spiralling pressure via the finger tips, and gentle pulling and twisting of the hair.

Using the finger test on my head, I realized that the skin of the scalp was completely stuck down like superglue to my skull, with no movement whatsoever, and was also extremely tight. I realized that the profound constriction this was causing could be feeding into my neurological issues.

I began to do the hair health class daily, and indeed noticed an acceleration in my symptom reduction, especially in regard to brain fog, and improvements in mood and sleep. There is still some way to go, and hence more gains to be had, in releasing my scalp, due to the profound, and possibly life long, stuckness here, and the large surface area which needs to be released, but the skin is starting to free up and glide nicely in places.

I also began to be able access the lower legs, feet and calves. As Deanna points out, these are the most frozen places, and for me seem to be where a lot of toxins are stored. Initially, any attempt to apply fascia decompression to them would result in a healing crisis and overwhelm, so I was exiled from working on them.

As I have had made more space, and addressed some of the other places where major problems were apparent, I have slowly been able to begin to work on these areas. I am now seeing benefits in the reduction of not only the stiffness of my legs, but also further up the chain as Deanna suggests would be the case.

More recently, I have combined my fascia decompression practices with a form of talking therapy with Lilian Sjoberg, who addresses and releases body memories - unprocessed stressful episodes in life which get written into the body and fascia. This combination has further accelerated my progress. Very recently, I have noticed that on good days, that most debilitating symptom of severe dystonia in my right neck and shoulder doesn’t bother me at all anymore.

Florencia Cerruti, person with Parkinson’s Disease and author of Rebirth at 50: in the end, it was not The End

Since being diagnosed with PD almost 10 years ago, I have tried everything I could to decrease my symptoms, slow the progression of the disease and improve my quality of life.

Intuitively, when I came in contact with the Rolfing technique for Fascia decompression, I thought this was a path I needed to explore. In 2020 I had all the sessions included in the protocol. I had also been doing since 2016 with a body therapist weekly sessions of different techniques aimed at aligning the body and eliminating energy blockages.

In 2021 I started with Block Therapy and was amazed at the speed with which the changes occurred, and the multiplicity of dimensions in which they manifested. From the first sessions, I noticed the improvement in my breathing, being able to achieve something I had not been able to do before, and that is that the exhalations were longer than the inhalations. My breathing stopped being spasmodic, my cycles per minute decreased.

Then, my body temperature regulation improved, I stopped having constipation, my stiffness decreased noticeably and my posture improved a lot.

The dystonias that affected my entire left side decreased in frequency, duration and intensity. Each new area of work represented a new field of improvement. In particular, the work at the level of the face and skull made me think that many of the symptoms of PD are related to poor tissue oxygenation, and that by improving the way we breathe and eliminating the fascia adhesions that block the flow of oxygen and nutrients to the cells, it is possible to achieve unexpected results.

This mini video of before/after 30 minutes of block therapy on my face, for me speaks for itself:

In this second video, I asked my body therapist to narrate the changes she observed since we started working, including the improvements she noticed when I started BT:

Here I am speaking with Deanna about my experience:

In Assistive Technology, Biography, Books, Brain Science, People, Re-thinking Movement, Therapies, Video Tags Fascia, Self Help, Bodywork
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Parkinson's Disease Carousel: Original Articles and Ideas
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I have been working in the fascia system for twenty three years and have come to understand this system intimately. Spending over 60,000 hours working on both patients, and myself, the changes I have seen from Fascia Decompression, is helping people all over the world.

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February 18, 2022

By Florencia Cerruti, person with Parkinson’s Disease and author of Rebirth at 50: in the end, it was not The End.

Very shortly after my diagnosis of Parkinson's disease at age forty seven, I asked a neurologist how long I should work. His answer was: "Until the last day that the disease allows it." His words echoed within me: what would happen that day? Would I be the one to decide or would it be my colleagues and bosses at work who would warn me before I had the chance to decide? What would the signal be? In any case, what would it be like to work until the last day the disorder would allow me to?

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February 18, 2022
Survival Instincts and Parkinson's Disease
February 3, 2022
Survival Instincts and Parkinson's Disease
February 3, 2022

To help shake off the gloom about this, I call our survival instincts our superpowers, because it is a more resourceful way to look at the body and the problems we might be experiencing. Try saying "thank you, body, for keeping me safe, but now it is time to bring me out of the safe survival state and back to the normal range of health and grow." This ought to give us a little more faith in the dispositions of our body.

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February 3, 2022
Feeling Trapped and Parkinson's Disease
December 13, 2021
Feeling Trapped and Parkinson's Disease
December 13, 2021

As a first step, we perhaps need to identify the places where we are stuck in our lives, those stressors which come with a sense of being trapped, the stressful things we can’t fight or flee from, and try to address these. This is because the tonic immobilization framework of PD predicts that it will be very hard to reduce symptoms in circumstances that our nervous system is constantly feeling trapped by a proximate threat. Examples include being in a toxic relationship, living in a house with neurotoxic mould infestations, workplace exposure a chemical agent, enduring a long and stressful daily commute to work.

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December 13, 2021
Motivation, Pleasure, Pain and Parkinson's Disease
November 4, 2021
Motivation, Pleasure, Pain and Parkinson's Disease
November 4, 2021

The activation of the habenula inhibits or deactivates the dopamine neurons in the substantia nigra and ventral tegmental area, and, conversely excites or activates them when it is deactivated. This has profound implications for PD, as this points to the possibility that it is not cell death which causes the issues in PD, but chronic activation of the habenula permanently switching off the cells in the substantia nigra from producing dopamine. This is a more hopeful hypothesis, as it means the cells are just dormant, not dead. If we can figure out how to deactivate the habenula, this could provide significant symptom reduction.

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November 4, 2021
Dopamine Cell Receptors and Parkinson's Disease
October 2, 2021
Dopamine Cell Receptors and Parkinson's Disease
October 2, 2021

Cell receptor population dynamics therefore may play a primary role in environmental interactions (nurture) and can profoundly affect biology (nature), and may be the mechanism through which history gets written into the body, such as affects of childhood trauma in later life. Cell receptor population dynamics also provide strong and significant neuroplasticity without the need for new neurons or new synaptic connections/wirings per se, by profoundly affecting the functions and sensitivities of the existing neurons themselves.

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October 2, 2021
Dopamine and Parkinson's Disease
August 15, 2021
Dopamine and Parkinson's Disease
August 15, 2021

The Huberman Lab podcast is a lecture series by Prof. Andrew Huberman, professor of neurobiology and ophthalmology at Stanford School of Medicine, on practical and free tools for optimizing health based on the very latest neuroscience and human biology research. This podcast contains vital, actionable, and need-to-know information for people with Parkinson’s Disease, in particular of the latest pragmatic research into dopamine biochemistry. Dopamine is the major neuromodulator which is most problematic in PD, and the target for the mainstay medical interventions. So here I’ve extracted from the podcast episodes the timestamps of everything Prof. Huberman has to teach us on the subject of how to optimize our dopamine biochemistry. The format is the episode title, in order of release, followed by the corresponding timestamp links and descriptions whenever dopamine is referred to.

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August 15, 2021
Visual Cues and Parkinson's Disease
July 26, 2021
Visual Cues and Parkinson's Disease
July 26, 2021

I learned about the connection between the eyes/vision and movement of the body in an online course run by my friend and "Wisdom Coach" Cheryl Townsley, where a tutorial showed how, looking up or down with the eyes (not via movement of the head) creates an immediate increase in the range of specific arm/shoulder motions. I could quickly check this was indeed true for myself. Indeed, the connection between eye and body movement is so important that professional athletes are being trained in these types of techniques, and are given specific eye exercises to improve sports performance!

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July 26, 2021

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Testimonials Carousel: What People Say
March 13, 2025
Coloring with Parkinson's
March 13, 2025

By D.M. via email

Works for me, I am coloring mandalas now and everyone tells me they are very beautiful. I find coloring helps my focus and my tremors. I fall asleep in my chair, if I start coloring I am wide awake and on the ball. I started by coloring adult swear word books, they were most amusing. Mandalas are complex sometime take four or five days to complete. By the way: I am 90 years old and have had Parkimson’s about three years.

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March 13, 2025
November 28, 2024
Very Encouraging and Refreshing
November 28, 2024

By Katrina B.

I thank Gary and Lilian for sharing their experiences, findings, and recommendations regarding Parkinson’s. I have a Parkinson’s diagnosis and also experienced the cold news of “no cure, progressively degenerative,” etc. I purchased and read Lilian’s book. Very encouraging and refreshing. I also bought a book Gary recommended called Music As Medicine (Daphne Bryan, author), which has helped me to walk without firing the dystonia in my left foot. That’s a huge win for me! I followed links in Gary’s material to videos on breathing techniques to release stress and reduce my adrenaline. That’s helped my tremoring remarkably. So… many thanks to Gary and Lilian. I will continue to follow and engage. Oh, and I have shared your names and resources with my occupational therapist, physical therapist, and speech therapist. They were very interested. I tried to share with my neurologist. He wasn’t interested. No surprise there.

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November 28, 2024
April 19, 2024
Stuck on Pause
April 19, 2024

By Dave F.

Hi Gary, I just found your Parkinson's online information a week ago or so. Your perspectives on a potential root cause of PD being related to trauma, stress, inhibited parasympathetic system, etc. seems synergistic with my path to address my PD. Although I do not call it PD anymore. I call it being "stuck on pause". I have a list of over 150 things I could be doing (does not include pharmaceuticals), and the therapy I am primarily focused on is based on the books "Recovery from Parkinson's" and " Stuck on Pause" by Janet Hadlock (available as pdf's on pdrecovery.org). While I address symptoms with 2 hrs of exercise daily, meditation, clean vegan diet, etc... my approach to recovery is getting unstuck. Unstuck from a norepinephrine/adrenaline based nervous system back to a parasympathetic/sympathetic balanced nervous system. Are you familiar with Hadlock's work? If so, what might be your perspective in relation to your findings? If not, I created a 2 page overview I can send if interested... or you can download the books for free.

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April 19, 2024
August 12, 2023
Photobiomodulation or Red Light Therapy
August 12, 2023

By S.S. via email

I have late onset vascular Parkinsonism-diagnosed age 83, and came across Dr Catherine Hamilton’s blog redlightsonthebrain.blog. The author is a retired general practitioner who is involved in research in Australia. I have been using transcranial and intranasal lights for 5 months and have experienced relief from symptoms that has greatly improved my quality of life and am surprised not to see many (1 only) references to the benefits of this therapy.

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August 12, 2023
July 7, 2022
Tremors Reduced
July 7, 2022

By Facebook Group Member

I have been having great success with the Hope Shortcut programme. I have both Lilian Sjøberg and Gary Sharpe courses. The material really resonates with me and this approach together with John Coleman Rethinking Parkinson’s is really helping. The tremor I have been experiencing is much reduced and often gone completely. I notice how it ramps up when I am stressed or self conscious. My mood and energy levels are much improved.

What hasn’t improved is the slowness and stiffness in my right hand and leg. It is probably not noticeable to others but I notice when using static bike and when folding washing etc. any thoughts on root causes of this slowness? Left hand side fine.

Thank you all for your work

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July 7, 2022
March 29, 2022
Accessible Knowledge
March 29, 2022

By S.A.

Thank you both for all the work you have done. Lilian Sjøberg for your knowledge and Gary for helping to make it accessible. My daughter who suffers from anxiety and panic attacks and myself with PD found it so enlightening. I can also see how when my father 93, who also has PD, gets stressed his cognition deteriorates dramatically

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March 29, 2022
October 19, 2021
Staying Positive
October 19, 2021

By Brad Maybury

Gary, I mainly want to thank you for this site and for your inspiring example. I was diagnosed with PD two months ago. On top of that, I'm in my sixth week of radiation therapy for Prostate Cancer with the accompanying hormone meds (fatigue). Your attitude and example are helping me to stay positive and feel that I can beat both of these! I've been doing the fast-walking per John Pepper, plus a bunch of other things. I'll get a mini-tramp soon. I already understood the trauma link, having discovered my own about six years ago, as well as being a fan of Gabor Mate (I see his book on your site). I had not made such a precise connection with PD until reading your story (thanks!). You are a huge inspiration and have already helped to improve my life!

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October 19, 2021
July 28, 2021
Suggestions for Exploration
July 28, 2021

By Frederick Lowe

Your understanding of the many important factors that contribute to Parkinson's and the many practical suggestions on how to address them runs parallel to my learning over the last 5+ years. You are a man after my own heart. Love the Polyvagal theory knowledge. I knew somewhat of the importance of improving vagal activity, but not to the depth you have shown. Thanks. Totally agree with knowing how the Cell Danger Response is involved with being stuck in the inflammatory and alarm state. And few others besides ourselves appreciate the amazing role the fascial system plays in this, from head to toe. This is besides nutrition, movement, social interaction, meditation, breathing, eye exercises, inflammation, etc, etc. Big thanks for mentioning the Eye Guide. That looks amazing. Hope it is available in the U.S. sometime soon.


Now suggestions of a couple of things: 1). More exploration on the ramifications of mitochondrial dysfunction, all the factors that affect that, and how it can be addressed (so far, all genetic abnormalities affect mitochondrial function). 2) Learn about Stephen Kaufman's Pain Neutralization Technique work on rapidly, effectively improving vagal function. I believe it works reflexively via its effect on the fascial system primarily, but also probably the nervous system.

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July 28, 2021
June 20, 2021
Educative Posts
June 20, 2021

By Milan Hoste

Dear Gary, I really enjoy and admire your educative posts. Thanks to you my lectures at University and my private coaching are better.

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June 20, 2021
March 24, 2021
Parallels with Trauma
March 24, 2021

By Dennis S.

I am 45 years old and I was diagnosed with Parkinson’s in 2015, at an age of 39. I always thought about chronical stress as a possible reason for Parkinson’s and recently I discovered the Polyvagal Theory. I guess similar to you, the parallels between Trauma and Parkinson’s seemed to be quite obvious to me. I had the experience that Somatic Experiencing can be helpful. Later someone recommended your website to me and I feel excited that you see it like I do. Thank you for that. it is always good to know that someone is sharing your point of view. I will read through your articles.

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March 24, 2021
February 4, 2021
Correcting Dysfunctional Sleep
February 4, 2021

By Jacob Kidney, Essential Movements Yoga for Parkinson’s/movement disorders (ET/Dystonia)

I really love reading everything that Gary Sharpe has to write about his experiences with Parkinson's. He is always spot on. I know this is true from my own experience as well. My symptoms are always worse when I don’t sleep well. I love what he says here about sleep being the foundation for symptom reduction and moving in a positive direction.

So what can we do to have better sleep? I would love to hear what everyone does to help them sleep better.

For me, doing some sort of intense exercise earlier in the day and followed by a few different deep relaxation techniques/routines in the evening have dramatically changed my sleep patterns.

My sleep patterns were always very inconsistent all throughout college. Between working full time and full time school I would often go for three or four days at a time with only sleeping three to five hours per night. This pattern persisted for more than four years. It resulted in my tremors and overall health getting worse.

It has taken me two years of persistence to correct these dysfunctional sleep patterns to the point where I can manage my symptoms much more effectively and have begun to move in a positive direction.

This has been done by doing intense exercise every day. This can include biking, running,, hiking, weightlifting, yoga, etc. you need to effectively use the adrenaline in your body or else it is going to exacerbate your symptoms.

Then in the evening I will try a number of different things to help my body wind down and prepare it for sleep. This could include deep breathing, meditation, Yin Yoga, Restorative Yoga, and Yoga Nidra. I always have an air mister defusing essential oils and gentle soothing music while falling asleep.

Also, scheduling daily free time to rest and take a nap if I need it has been invaluable. Especially, right after doing intense exercise.

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February 4, 2021
October 27, 2020
REM Sleep Behaviour Disorder
October 27, 2020

By Darrell L.

REM sleep behaviour disorder (RBD) and the onset of PD

I stumbled on your site while probing the internet for info relating to a sleep disorder known as REM sleep behaviour disorder (RBD). This has been a fixture in my life since I was a child...and has continued into my middle-aged years (I'm 37 now). At times it's been a mere curiosity as it doesn't noticeably disrupt my life to any great extent; however, in the resent years I've been sharing a bed with a partner who is somewhat less of a deep sleeper...so I've been hearing more about my night-time adventures. The curiosity took a bit of a turn when my reading suggested that RBD is a very common marker for the onset of PD. Statistics range from 80-90% of those who develop RBD receiving a PD diagnosis within 10 years. Interesting. From there, I started to investigate possible therapies/treatments. Currently, the sleep disorder could be considered ideopathic. Very little is known about the origins. Aside from lifestyle changes (diet, exercise, caffiene/alcohol intake, sleep hygiene, etc.), Clonazepam is recommended. There's an aversion to this treatment for obvious reasons. Melatonin is another potential option, as is, full spectrum CBD. Beyond these suggestions, there's not much else; however, Clonazepam is used to treat anxiety, so it got me thinking about the potential emotional links that may be embedded in the disorder. This got me thinking about Gabor Mate and his book, ''When the body says No.'' So, with PD and Gabor, I found you!

Such a wealth of information. I've only just scratched the surface, but feel a wellspring of gratitude that it's here. Just delving into the Polyvagal theory...and trying to put together some ideas for a course of action. I don't know that I'll develop PD, but so much of the material here rings true for me...so it's got me thinking about what I can do now.

I'm wondering if you've got any material on this link that exists (PD and RBD)...or if within your network you've encountered those who have story that's similar to mine.

Thank you so much for sharing your own journey. Such a helpful resource.

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October 27, 2020
August 11, 2020
Yoga Therapy
August 11, 2020

By Theresa Conroy, C-IAYT (certified yoga therapist by the International Association of Yoga Therapists).

Gary Sharpe's website provides something invaluable to my Yoga Therapy clients with PD: informed, personal experience. My clients are engaged and knowledgeable about their disease, but they crave real-life input on treatments and wellness. Gary does that with clarity, style and humor. That's why his site is one I often use as a resource for my students.

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August 11, 2020
November 27, 2019
Strategies of Recovery
November 27, 2019

By Babs Meade

Thank you Gary ! Your work is informing my work and life. As a healer-bodyworker, neuromuscular integrative movement therapist, Acupuncturist nerd, Esogetic Colorpuncture person with neuroimmune issues - addressing trauma awareness and recovery for people. Trauma-shock, shake, Reaction Patterns, Adaptations, Addiction. Sorting these out...sorting out strategies of recovery. Nourishment, laughter, music, art, emotions, Soul, Body, Spirit... thankyou Gary Sharpe for your excellent life’s work

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November 27, 2019
September 3, 2019
Applications of Polyvagal Theory
September 3, 2019

By Olivia Streater Lavizzari

I spent the day reading your blog and videos -- SO profoundly MOVED AND AMAZED by what you are doing! It is incredible and wonderful. I wondered if you have the new(ish) book Clinical Applications of Polyvagal Theory. In the chapter on strokes by Deb Dana there is some great stuff that I think could also be applicable to PD. A lot of which you already cover in your blog; things like frozen facial expression etc. Very glad I came across and shared with my professor, who is researching use of Flamenco and Tango in dance movement therapy PD interventions.

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September 3, 2019
May 24, 2019
Hope and Inspiration
May 24, 2019

By Rick Potvin

Your site was the very first thing I read the day I came home from the neurologist with my diagnosis of PD. It gave me so much hope and inspiration that I started the very same day on program of strenuous exercise, diet, etc. I actually picked up my guitar, my one true passion, and thought I can do this. Two years latter I'm still doing it thanks to your insight, research and sharing of knowledge.

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May 24, 2019
February 7, 2019
Headed in the Right Direction
February 7, 2019

By Cheryl Nicholson

I’ve been very inspired by these posts. I have a Parkinson’s client who was in a wheelchair and who would crawl to get places. He’s now able to get up and walk to the washroom on his own. He even went out and shoveled his driveway. We are using targeted nutrition, intentional movements, red light intranasal therapy and Natural Bioenergetics to improve his life. He still has days where he goes backwards, but overall things are headed in the right direction. Many thanks for reporting on your own progress and providing information that helps others!

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February 7, 2019
September 10, 2018
Husband Diagnosed
September 10, 2018

By Kay Pyke

Did a quick search this morning and found the website which has so much info that I’ve been looking for. My husband has just been diagnosed and I’m researching how to help him. This is so inspirational and I’ve forwarded it onto our neuro physio. Oddly enough she came today armed with hand exercises which is what led me to this website. I’m in tears. So happy to have found you.

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September 10, 2018
September 10, 2018
Making Changes
September 10, 2018

By Adam M.

Gary, I want to say a huge thank you for your website! It has been a big help. I’ve changed my diet to fit Dr. Mischley’s recommendations generated by her research. I also bought the smovey rings. Right now I’m doing a Feldenkrais style movement intensive which seems to be helping.

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September 10, 2018
June 21, 2018
Craniosacral Therapy
June 21, 2018

By Sue Watson, Sue Watson Craniosacral Therapy

Hi Gary,
I am so excited to come across such a refreshing approach/understanding of Parkinson's sisease. I am a craniosacral and physiotherapist doing a bit of digging for useful info about gut health and P.d. for a client when I came across your website. I don't know if you have had any experience of craniosacral therapy, but big into the effects of whole systems harmony, polyvagal theory and impact on neurophysiology/psychoneuroendocrinoimmunological etc.

I have recently taken a career break from the NHS to follow my passion for cranial work and develop how I integrate the understanding that comes from cranial teachings with movement based practice. Your findings sit so in harmony with my experience. I have to say that I haven't gone out of my way to look further into similar approaches to P.d. - from what I see on you website, you appear to be pioneering a way forward - is this all your own research, or can you point me to other sources too?

I have worked with a number of Parkinson's clients very effectively, but - as is often the case with 'complementary' approach, the challenge is in embracing quite a different way of thinking - and the medication/grip of disease/anxiety and stress are powerful and seductive hooks. The gentlemen I am looking into gut health for has found after a couple of our sessions, but not all the time, he is able to play piano after 9 years of his tremor being too disruptive. Our next work is with me carrying out cranial work while he is playing and exploring the sensory experience/interoceptive experience of doing so - then looking at ways he can find balance and access that 'place' for himself.

We (therapists) do a lot of work with trauma recovery, establishing resources with - building stronger neural pathways to grounded/balanced CNS states etc., as well as the benefits of the hands on work itself. Familiar with Gabor Mate/Lavine/Roschild etc, all sitting comfortably with how trauma affects movement and inhibition of such.

My experience as a physio in the community has involved lots of work with Parkinson's and increasingly I see the effects of stress and the social engagement system being critical to understanding and improving movement, and in the last 3 years have done much more work with body awareness during activity, whether it be gaining flexibility or strength or balance. The toughest part is engagement especially when the general physio community is not promoting the same message. As you're website implies, it requires such a commitment to your well-being. I totally admire your perseverance and have empathy for how challenging it must be for you at times.

Is your approach being embraced by the professionals researching the rehab/recovery work? I would be really interested to hear more. You may be interested in the work of Body Intelligence/biodynamic craniosacral therapy, Pain is Really Strange (FB and blog site) - although name implies about pain, it's that full mix of what you have been exploring yourself (Steve Haines, craniosacral therapist).

Kind regards, Sue Watson (Scotland)

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June 21, 2018
May 27, 2018
Music is Medicine
May 27, 2018

By Consuela Harper

Gary, I love your approach, and the way you describe and illustrate it so well in this article. Watching the music and dancing video was a true delight. I also read your post about digital music as medicine, and wanted to comment on that because I felt so moved by it. I love this post so much!!! I can relate fully. I've said for a long time that music is medicine for my body. And it's a delight to see the videos of the effects of your music medicine on your body and spirit! :)

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May 27, 2018
April 26, 2018
Social Isolation
April 26, 2018

By Marva Lee Weigelt

What a revolutionary week this has been for me to integrate new understanding, launched by Gary Sharpe’s post about how trauma and chronic dysregulation affects other people’s perceptions of us in social situations. I had a giant aha that helped me understand and have compassion for my own mysterious social isolation as a child and well into adulthood.

Integrating that with my increased awareness after taking a class a year and a half ago and staying in touch through groups like this, I am able to understand that honing my interoception skills allows me to recognize virtually instantly when I am in the presence of a dysregulated person. I’m sure I’ve always done this, but without the comprehension of what’s happening.

I am using this raised awareness to great advantage in my peer support practice, and also observing how I am assisting others with cor-egulation.

Then, last night, in a community ukulele group I lead, I could understand why I was reacting as I was to a young woman who is a beginning player. It is quite clear that the rest of the group is having a similar reaction to her. In fact, one player stayed afterwards to talk to me privately about how the awkward young woman made her feel unaccountably “nervous.” I was so happy to have the language and concepts to help her understand what I thought was happening at the nervous system level. Then she said, “I used to be that way myself,” and I knew I had a new ally in building compassion instead of following the natural, but heartbreaking impulse to avoid and exclude this young person."

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April 26, 2018
March 31, 2018
From Malta
March 31, 2018

By Mildred Atanasio

Hello Dr. Sharpe, I am very glad I came across your videos and messages on facebook! I just want to say a huge thanks as all your info is very useful. My mum was diagnosed last year. In Malta, even medication is limited. But anyway, I have lately also started helping out with managing the page Malta Parkinson's Disease Association, which tries to bring Maltese people with PD (and others) together. I find your articles (and especially your improvement) very admirable and much more helpful! Thank you once again.

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March 31, 2018
March 6, 2018
Impactful Discoveries
March 6, 2018

By Julie Brown Sheil

I really admire this man. Gary Sharpe is a Warrior in the fight against Parkinson’s Disease.

He has been tirelessly researching therapies and documenting their effects along the way so that others can witness how he is healing himself. He also shares them with the world so that others can benefit from them, too.

He has refused to let doctors convince him that there’s nothing that can be done to slow or reverse symptoms. He has refused to become a victim of, or defined by, his disease. The best part is, he’s winning. He’s improving his quality of life (and that of others).

I follow Gary because once I found out I had neurological disease from Post-Concussion Syndrome, I began researching ways to help myself. Even though I don’t have Parkinson’s, I do have a chronic disease and I have found all of Gary’s insights (listed below) to be true in my case as well. Doctors don’t know everything. Specialists only know their specialty. Doctors chase symptoms rather than chasing the cause of the symptoms. Patients who are intimately involved with their own healing do better. Patients who think outside the box can make some impactful discoveries, not only for themselves, but for others.

It’s a sad state of affairs that patients are left to navigate their own recovery and healing. But it can lead to some amazing discoveries.

Gary is the reason I started my Mind Matters Mondays posts. I want my journey to be able to help others, to make it a little less likely that someone will have to struggle to find answers or relief the way I have.

Thank you, Gary, for all that you do!

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March 6, 2018
March 6, 2018
Co-Regulation
March 6, 2018

By D. Hutton

I experience chronic pain on a daily basis due to chronic disease. Chronic pain is mentally and physically exhausting. Part of my self care is co- regulating my nervous system with my husband everyday. We sit quietly, calmly together and observe how our bodies feel, just breathing/existing. We are in physical contact, sitting on the couch. We practice observing how our thoughts, conversation and emotions affect our nervous systems. Sometimes I get very anxious if he shows empathy when I don't want it. Sometimes we just sit quietly. I actually resisted the co regulation aspect of the poly vagal theory, but you were so persistent with this information that I finally tried it out. Life is so much better now!! Thank you for your persistence, dedication, and information Gary Sharpe!

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March 6, 2018
February 6, 2018
Outstanding Information
February 6, 2018

By Brandon Knight

Outstanding information, you are very helpful as you explain what you are feeling in a clear way. Thanks for putting in the effort to make these. Disconnect between the brain and body feels about right to me and I will be making some devices for myself to test out. Just started with sinemet and I am 40 so far it has been a big help my right foot has been about like yours since I was 34. I am not even sure if I have Parkinson's maybe some other dopamine issue have dat scan scheduled seen multiple neurologist and they have not been able to pin it down they are going off medication response at this point thinking it might be a dopamine responsive dystonia. Any way just wanted to thank you for putting these together and explaining that the medication on its own will not be enough. The sinemet gave me to mobility to move with less pain so I can work out again as well as helped me think more clearly but I do believe that it is what you do with the room the medication buys you that will make the difference although I understand we are all different. Thank you again for posting these they do help.

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February 6, 2018
January 21, 2018
Slowing Down Progression
January 21, 2018

By Simon Clarke

I came across your website at a very opportune time - much of your research, information and experience corroborate my own. Many of the PD symptoms (before and after life hacks) you demonstrate in your videos bought a smile to my face, seeing someone else taking a proactive role and showing real progress. Thank you!

I was diagnosed with idiopathic PD at the age of 48. As you know- getting that diagnoses and prognosis ruined my day... and the rest of my life (or so I thought). I went through the various stage of grief and went on Meds with resignation to my fate.

However about 2 years after diagnoses, I had an epiphany (of sorts) and realised I no longer needed to be a victim as there must be some way of alleviating and/or slowing down progression. This led me to shiatsu, yoga, yin tuinna, mindfulness, meditation and to Zhineng QiGOng which I have been doing for the least 2.5 years with great success. During this time, I have searched the web relentlessly (PD trait!!) and come across some useful info..

However I think your website is one of the most comprehensive resources I have seen of all the information and practical, holistic guidance collated in one place. It’s a very useful place to start when looking for a way through PD that encourages the understanding and healing of the entire BodyMind system.

The last week I have been reading Norman Doige's book-the brains way of healing. Full of good information

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January 21, 2018
October 25, 2017
Exploring All the Potential Causes
October 25, 2017

By Ken Howard

May I also add my humble gratitude for all you are doing to help us tackle Parkinson’s. In a recent “Live Loud” session organised by the Cardiff branch of Parkinson’s UK, we were asked to nominate someone who has inspired us to fight against this pernicious disease. I nominate you, Gary! You have shown me that we should not give in and accept the inevitable, but should keep on fighting! Rule 1 in any battle is “know your enemy”. You have been tireless in exploring all the potential causes - physical, chemical and psychological, and sharing your findings with us. Secondly, you have amazed us with your enthusiastic approach to trying any potential treatment, no matter how obscure it may seem. I am trying out many of these, principally the exercise, diet and mindfulness related therapies. These have helped me significantly, and I’m particularly interested in your research into the Vagus nerve issues. Please keep up the good work - I shall keep on fighting with you!

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October 25, 2017
September 10, 2017
Can-Do Attitude
September 10, 2017

By Tina Gebhart:

Gary, I may have been researching before finding your page, but your consistent encouragement, posting of your supplement and exercise trials, and general can-do attitude have been super motivating for me. I would not have gone gangbusters on this fish oil and fasting thing if I had not seen your experimental models. I may not have built up the nerve to go against my first neurologist and then find a better, awesome one. Thank you a million times over. I consider you my big brother, as sappy as that may sound.

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September 10, 2017
August 28, 2017
Connecting the Dots
August 28, 2017

By Gregory Layer:

Gary, you are a gift to this world. Your effort to connect the dots of our daily life and daily choices to our long term health and how disease manifests in our bodies is making a huge difference in my life. I am inspired by your work but more importantly, I am inspired by the spirit with which you share your experience with others. Keep up the great work and know that you are loved and appreciated, just as you are!

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August 28, 2017

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