Pragmatic and practical insights, tips & tricks and research for people with Parkinson's Disease and caregivers, from the insiders' perspective.
Includes Dr Gary Sharpe's inspirational video diary, demonstrating to the world how Gary is continually pushing back the symptoms, reversing and recovering from Parkinson's Disease, nearly eight years into diagnosis.
Julie Brown Sheil
I really admire this man. Gary Sharpe is a Warrior in the fight against Parkinson’s Dusease.
He has been tirelessly researching therapies and documenting their effects along the way so that others can witness how he is healing himself. He also shares them with the world so that others can benefit from them, too.
He has refused to let doctors convince him that there’s nothing that can be done to slow or reverse symptoms. He has refused to become a victim of, or defined by, his disease. The best part is, he’s winning. He’s improving his quality of life (and that of others).
I follow Gary because once I found out I had neurological disease from Post-Concussion Syndrome, I began researching ways to help myself. Even though I don’t have Parkinson’s, I do have a chronic disease and I have found all of Gary’s insights (listed below) to be true in my case as well. Doctors don’t know everything. Specialists only know their specialty. Doctors chase symptoms rather than chasing the cause of the symptoms. Patients who are intimately involved with their own healing do better. Patients who think outside the box can make some impactful discoveries, not only for themselves, but for others.
It’s a sad state of affairs that patients are left to navigate their own recovery and healing. But it can lead to some amazing discoveries.
Gary is the reason I started my Mind Matters Mondays posts. I want my journey to be able to help others, to make it a little less likely that someone will have to struggle to find answers or relief the way I have.
Thank you, Gary, for all that you do!
I experience chronic pain on a daily basis due to chronic disease. Chronic pain is mentally and physically exhausting. Part of my self care is co- regulating my nervous system with my husband everyday. We sit quietly, calmly together and observe how our bodies feel, just breathing/existing. We are in physical contact, sitting on the couch. We practice observing how our thoughts, conversation and emotions affect our nervous systems. Sometimes I get very anxious if he shows empathy when I don't want it. Sometimes we just sit quietly. I actually resisted the co regulation aspect of the poly vagal theory, but you were so persistent with this information that I finally tried it out. Life is so much better now!! Thank you for your persistence, dedication, and information Gary Sharpe!
Outstanding information, you are very helpful as you explain what you are feeling in a clear way. Thanks for putting in the effort to make these. Disconnect between the brain and body feels about right to me and I will be making some devices for myself to test out. Just started with sinemet and I am 40 so far it has been a big help my right foot has been about like yours since I was 34. I am not even sure if I have Parkinson's maybe some other dopamine issue have dat scan scheduled seen multiple neurologist and they have not been able to pin it down they are going off medication response at this point thinking it might be a dopamine responsive dystonia. Any way just wanted to thank you for putting these together and explaining that the medication on its own will not be enough. The sinemet gave me to mobility to move with less pain so I can work out again as well as helped me think more clearly but I do believe that it is what you do with the room the medication buys you that will make the difference although I understand we are all different. Thank you again for posting these they do help.