Who Are We?
Dr Gary Sharpe, Phd is a scientist, engineer, writer and digital media expert, diagnosed with Early Onset Parkinson's Disease eight years ago. Out-Thinking Parkinson's was created with the help of Deb Helfrich, a philosopher, author and wellness mentor who specializes in astute listening and keen observation. Together, they started developing a method for recovering from Parkinson's Disease. Today, Out-Thinking Parkinson's has become a major resource, where Gary and colleagues from around the world, who also have an insider's perspective of PD, share their knowledge, philosophies and experience of living well with PD, and, also, record their stories of recovery through holistic approaches.
What Do we Do?
Out-Thinking Parkinson's is a holistic knowledge approach seeking to unlock the conundrums of Parkinson's Disease. We apply and test working hypothesis on Gary, observe and analyze the results. We then optimize the solutions which work and continually integrate new interventions. Progress is fully documented via a video diary. Information is freely shared for the benefit of all People affected by Parkinson's. All our interventions are non-medical, non-surgical and everything in our recipe for recovery can be implemented at home on a daily basis.
Why Do we do it?
Simply to stop the suffering of People with Parkinson's and their families as quickly as possible. We are not seeking to understand the microscopic details of the disease nor are we looking to develop the science over time scales of years. We are engineering the simplest and most effective solutions that we can find and then freely sharing and documenting our empirical results for anyone else to evaluate for themselves.
Who Is It For?
We are focused on providing information and knowledge for everyone, including People affected by Parkinson's and those involved in their care, therapy and treatment, as well as education for the general public, students and the media.
What's in it for YOU?
Significant reductions in both symptoms and drug-induced side effects. Significant reduction in health and care costs.
Where are we AT?
Having reached a point where Gary had recovered a lot of movement, balance, mental health and speech, together with much improved wellness generally, we began a second phase of Out-Thinking Parkinson's, based on further research which involves Gary seeking to lower his drug burden as much as possible. This was hard going in the initial stages, but using the evidence gathered in the first stage, we were able to show that it really is possible to reduce the drug burden and improve quality of life at the same time. By the end of this phase, Gary had weaned himself of ropinerole - a dopamine agonist drug, and amantadine - prescribed to counteract uncontrolled movement (dyskinesia) induced by the other medications. He is now on Madopar (l-dopa) only, and most nights he now sleeps through without having to take any drugs, allowing him to have an eight to ten hour "drug holiday". His dyskinesia is signifcantly better contolled. We continue to document the progress.
We have now begun a third phase, having learned in the second stage that the neurodegenerative aspects of the disease are the effect/outcome and not, as people with Parkinson's are being misinformed about, the primary cause. We now know that the causal effects arise in malfunctions of the nervous systems (enteric, sympathetic and para-sympathetic). Based on this understanding, we are now both educating as many other people affected by Parkinson's as we can, as well as implementing - and having rapid success - with interventions based on these new understandings.
What Does IT Take?
A lot of hard work, dedication and intensive practice. Sticking to dietary regimes. Mindfulness and positive thinking. The right toys and props. Relaxation techniques. The desire to be a calmer, more fulfilled person than who you were before Parkinson's manifested.
WHAT Does IT COST?
Nothing. The website is free and open access. The only means of support is via a Crowdfunding Appeal, which we simply ask people who have found our work helpful to consider contributing to.
How Do I STAY Informed?
You can subscribe to our social media channels or sign up to our website notifications, but the best way is to join our Facebook Group and ensure Group Notifications are switched on.