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Progressive Symptom Reduction Strategies for Parkinson's Disease
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Tremors and Parkinson's Disease

August 21, 2022

Foreword by Gary Sharpe

Tremors (uncontrollable shaking) are commonly seen in many named chronic conditions, from Parkinson’s Disease, restless leg syndrome, chronic stress and anxiety, essential tremors, shell shock/PTSD, MS, panic attacks, etc.

In an episode of acute stress, tremors are an adaptive response. They are seen in animals and people, when their Nervous Systems are gearing up for fight-or-flight action, and also as a mechanism to discharge the energy/adrenaline after the danger or excitement has passed. Tremors are also seen when animals shake themselves out of a deeper freeze or tonic immobility stress response, as in the famous video of an impala coming out of a death feigning episode, shown in the video below.

In humans, tremors are also often seen in comatose people, also as people come out of general anaesthesia, and during electrical shock treatment for depression.

Humans, however, have a tendency to get stuck with tremors, usually when one or more body memories or trauma of stressful events are not processed properly at the time, and hence get installed.

Tremors are often the number one symptom that people with chronic issues would like to wish away. This is because they are so visible, and many find them embarrassing, which increases the stress of being in public, and can lead to isolation, which further increases stress, which can make the tremors worse. For a similar reason, people often say that their tremors are their most bothersome and stressful symptom, precisely because they are not able to hide it, and hence the fact they have health issues, e.g. from the boss or the family. This is unfortunate, because, as anyone with tremors can relate, acute or chronic stress tends to make the tremors noticeably much worse, so trying to hide them can backfire.

Fortunately, from the perspective that tremors are a manifestation of a stuck stress response, this type of symptom can be progressively alleviated through stress reduction techniques and therapy, by learning how to calm the nervous system, and by spending more time in totally relaxed states. Indeed, this is demonstrated by reports of people’s tremors disappearing while they under hypnosis and by common anecdotal reports that when meditating, the tremors are not present.

In this article, Danish Coach and Therapist, Lilian Sjoberg, relates her therapuetic experiences of working with people with tremors and Parkinson’s Disease.

My Experience of Working with People with Tremors

By Lilian Sjøberg, Danish coach and trouble shooter, good at seeing patterns, with a masters in biology, who has studied how to help people with chronic diseases such as Parkinson's Disease (PD) from a practical perspective for five years.

Introduction

Tremors come in many amplitudes and frequencies. They can even be only felt inside (internal tremors), When I started my studies, I picked four people, each with a chronic disease diagnosis, and one of them, Michael, had Parkinson's Disease with a very noticeable tremor. The tremor could move his hand as much as ten centimetres from side to side.

I soon discovered that I could always get Michael’s tremor down to nothing for several minutes via my calming techniques. Then the tremor would start again. After I had seen this pattern quite a few times, I started to get curious about this phenomenon.

I found that I could simply help him calm down his mind, which had an immediate effect on his tremor. To calm him down could take up to an hour, but we always ended a session with him having no tremor. Typically, we found a traumatic event in his life and resolved that memory to the extent he could talk about it without getting fearful feelings.

Example of a body memory

An an example, he recalled that when he was a four-year-old boy, he once overheard the grownups talking, and his grandma getting so upset that she left the house, saying the words “I am going to kill myself in the lake”. Even if it seems like a small thing in a grownup’s ear, it meant hours of anxiety for his boyhood self, waiting to see if his grandmother ever came back from her walk. These fearful feelings were lingering in my client’s body for years until we tapped into this, and I facilitated a new understanding of this situation, so this trapped feeling could be felt safely, and then dissipate.

We can say, in brief, that a memory with a feeling, which was not processed properly at the time, is a potential source for any symptom because the body somehow stores these together until it is safe to be felt. If it is a dramatic event, we call it a trauma, but, as in the above example, it can also be seemingly relatively small things to an adult’s sensibilities, so we more generally call it a body memory.

In the above example, this body memory gave the child, and now the man, a feeling that the world is dangerous and loved ones and protectors can disappear and die. Having several similar episodes causes tension in the body build up.

However, it is indeed possible to reduce these triggers, and hence the tremors. Here is Michael, my guinea pig, in an old video, where you can see him, after the 148s timestamp, slowly is learning to find a peaceful place in his mind and reduce the tremors. When people with tremor have experienced this several time they surrender to the biological fact that stress and tremor is connected. and we all know that stress is treatable.

To what extent is it possible to reduce tremors?

If you do not have a lot of traumas in your past and have an open mind toward this alternative, it is possible to get free of your symptom, like my client Bjarne.

He was lucky that he got a new neurologist, that thought it was strange that his tremor had gone, and sent him to a new datscan, then declared him free of PD. If you have lots of traumas it just takes a longer time, but in the process, the days with fewer symptoms are also worth it.

Tremors are Natural

While damage to your body or seizures can produce tremors, in my perspective, most cases of a tremor are not pathological, but due to a natural response, induced by anxiety, excitement, fears, and being overwhelmed by other strong feelings.

Indeed, anyone can get a natural tremor in the following situations:

  • when you are cold or need a fever to naturally stop a germ/virus, your muscles start to tremor to produce heat;

  • if you witness something terrible, e.g. a horror movie - your body wants to flee and a tremor is preparing you for this;

  • if you witness or participate in a very exciting game (watching your favourite team in an important game) – this puts your body is in fight preparing you for a battle or competition;

  • when you are so filled with worries or regret that tension builds-up, you want to fight or flight from a situation you are just thinking about – e.g. you suddenly remember that you have forgotten to prepare a crucial task for your job tomorrow;

  • when you have been in the freeze survival instinct for several minutes, tremor is important in the process of returning to normal body function;

  • if your body has been shut down due to an operation - general anaesthesia mimics the chemical response to being in a full freeze, or playing dead as we call it – e.g. as in the video of the polar bear experiencing both stress and anaesthesia;

  • after or during a workout when you are starting up an exercise habit.

I think it is fair to say that tremor is a signature symptom of survival instincts, fight, flight, and freeze. I found that tremor being so visible is actually a help in my therapeutic practice because I can enquire what is on the person's mind when the tremor starts again after a break. The answer is an indication to the next body memory to deal with.

When healthy people get a tremor, they do not think or believe that they are diseased, they know they are stressed.

Adrenaline and Dopamine

Adrenaline is the hormone/neurotransmitter that causes stress responses, of which tremors are a part. Indeed, when adrenaline is actually injected as a drug in cases of severe allergic reaction tremor is a common side-effect. In a similar way, when we are overly stressed, with too much of our adrenaline released in our bodies and brains, tremors become prominent.

A crucial point to note is that adrenaline is created from dopamine, so being stressed too much means we are constantly converting our dopamine supplies into adrenaline. Conversely, this is why it is harder to work with people on high levels of dopamine replacement therapy, as in the case of the mainstay medication for Parkinson’s Disease. As people step up in the medication, this just provides more dopamine feedstock for their adrenaline production, so it becomes more difficult to know whether the tremors are due to medication enabling the stress response, or else are due to natural body memories. In my experience, more medication causes more tremors.

As we are biological creatures, it is wise to obey the signals from your body. Run if you can, fight with your pillow or in a boxing class, in order to eliminate the adrenaline from your system. When adrenaline begin to piles up in you and the tremor returns, one thing I have found that helps my clients it to go with the tremor, double the intensity, speed and size, and continue for as long as possible. After a few minutes of doing this, the adrenaline is used up. Your body thinks you have done the job and is safe again. You will get a few moments in peace… until you start thinking stressful thoughts about your to-do list or regrets again. Repeating this, you can hopefully see this pattern, and you start to understand that the tremors are part of your biological nature

This is why I prefer to have sessions with people when the medication has somewhat worn off, so that it is clearer when the tremors are connected to body memories in childhood or the past where small and big traumas have piled up, until the day that the person is constantly in fight or flight, and hence the natural tremors come frequently and are pretty persistent.

In the end, the daily tremor is so persistent that they cannot feel the variation or see the connection to the stress triggers. My task is helping them to see these connections, and facilitate the removal of all the triggers that can make their body release adrenaline. This can be done via coaching, where we look and see if there are unnecessary triggers in their daily life and environment, or whether it can be to see old traumas and body memories that are getting triggered by seemingly random things. If you get different symptoms levels in different environments, it is often an old body memory trying to protect you from ending in the same painful, scary episode again.

How I Can Help

More specifically, here is how I help people with tremors.

  • I acknowledge the fact that we are biological creatures with the same intact survival instincts which we know so well from animals.

  • I embrace the fact that the body contains memories loaded with feelings from past events, and by unwinding the most important traumas you slowly regain better health. Even science is slowly onboarding this idea. If you have doubts about this idea then look at old photos and see if emotions are stored together with the memory. Yes, we all know that this can be the case.

  • As it is a long-term process, you I teach you the skills and tools to do so yourself. The healing process gets kickstarted.

I have created a programme to help people reduce, and even eliminate, tremors, based on stress reduction principles, specifically in resolving the body memories that resulted in people getting stuck in the first place.

The step-by-step plan includes:

  1. Taking our free online course to learn all about body memories.

  2. Taking the online Stress Test to determine your “Stress Type”, and learn about your strengths and weaknesses in coping with stress.

  3. Watching the videos “Disease and New Hope”, “Stress”, “Exercise – Check Your Stress Levels”, “Physical and Mental Symptoms” and “Body Memories” in the H-module of the HOPE-shortcut online course.

  4. Learning the symptom tracking technique in the O-module of the HOPE-shortcut online course, and implementing this for tremors as the symptom, to build a map and get a good understanding of when and why the tremors are better or worse.

  5. Book therapy sessions with Lilian to identify and remove the specific body memories causing the tremors, using a highly tailored approach, via a toolkit of coaching and therapy which helps you to change your mindset towards one that support healthy living, to get in contact with troubled periods in your life, and, in the gentlest way eliminate the root causes of trauma and the associated symptoms or feelings.

In Brain Science, Mental Health, People, Re-thinking Movement, Video Tags Symptom Relief, Symptoms, Nervous System
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Testimonials Carousel: What People Say
March 13, 2025
Coloring with Parkinson's
March 13, 2025

By D.M. via email

Works for me, I am coloring mandalas now and everyone tells me they are very beautiful. I find coloring helps my focus and my tremors. I fall asleep in my chair, if I start coloring I am wide awake and on the ball. I started by coloring adult swear word books, they were most amusing. Mandalas are complex sometime take four or five days to complete. By the way: I am 90 years old and have had Parkimson’s about three years.

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March 13, 2025
November 28, 2024
Very Encouraging and Refreshing
November 28, 2024

By Katrina B.

I thank Gary and Lilian for sharing their experiences, findings, and recommendations regarding Parkinson’s. I have a Parkinson’s diagnosis and also experienced the cold news of “no cure, progressively degenerative,” etc. I purchased and read Lilian’s book. Very encouraging and refreshing. I also bought a book Gary recommended called Music As Medicine (Daphne Bryan, author), which has helped me to walk without firing the dystonia in my left foot. That’s a huge win for me! I followed links in Gary’s material to videos on breathing techniques to release stress and reduce my adrenaline. That’s helped my tremoring remarkably. So… many thanks to Gary and Lilian. I will continue to follow and engage. Oh, and I have shared your names and resources with my occupational therapist, physical therapist, and speech therapist. They were very interested. I tried to share with my neurologist. He wasn’t interested. No surprise there.

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November 28, 2024
April 19, 2024
Stuck on Pause
April 19, 2024

By Dave F.

Hi Gary, I just found your Parkinson's online information a week ago or so. Your perspectives on a potential root cause of PD being related to trauma, stress, inhibited parasympathetic system, etc. seems synergistic with my path to address my PD. Although I do not call it PD anymore. I call it being "stuck on pause". I have a list of over 150 things I could be doing (does not include pharmaceuticals), and the therapy I am primarily focused on is based on the books "Recovery from Parkinson's" and " Stuck on Pause" by Janet Hadlock (available as pdf's on pdrecovery.org). While I address symptoms with 2 hrs of exercise daily, meditation, clean vegan diet, etc... my approach to recovery is getting unstuck. Unstuck from a norepinephrine/adrenaline based nervous system back to a parasympathetic/sympathetic balanced nervous system. Are you familiar with Hadlock's work? If so, what might be your perspective in relation to your findings? If not, I created a 2 page overview I can send if interested... or you can download the books for free.

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April 19, 2024
August 12, 2023
Photobiomodulation or Red Light Therapy
August 12, 2023

By S.S. via email

I have late onset vascular Parkinsonism-diagnosed age 83, and came across Dr Catherine Hamilton’s blog redlightsonthebrain.blog. The author is a retired general practitioner who is involved in research in Australia. I have been using transcranial and intranasal lights for 5 months and have experienced relief from symptoms that has greatly improved my quality of life and am surprised not to see many (1 only) references to the benefits of this therapy.

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August 12, 2023
July 7, 2022
Tremors Reduced
July 7, 2022

By Facebook Group Member

I have been having great success with the Hope Shortcut programme. I have both Lilian Sjøberg and Gary Sharpe courses. The material really resonates with me and this approach together with John Coleman Rethinking Parkinson’s is really helping. The tremor I have been experiencing is much reduced and often gone completely. I notice how it ramps up when I am stressed or self conscious. My mood and energy levels are much improved.

What hasn’t improved is the slowness and stiffness in my right hand and leg. It is probably not noticeable to others but I notice when using static bike and when folding washing etc. any thoughts on root causes of this slowness? Left hand side fine.

Thank you all for your work

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July 7, 2022
March 29, 2022
Accessible Knowledge
March 29, 2022

By S.A.

Thank you both for all the work you have done. Lilian Sjøberg for your knowledge and Gary for helping to make it accessible. My daughter who suffers from anxiety and panic attacks and myself with PD found it so enlightening. I can also see how when my father 93, who also has PD, gets stressed his cognition deteriorates dramatically

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March 29, 2022
October 19, 2021
Staying Positive
October 19, 2021

By Brad Maybury

Gary, I mainly want to thank you for this site and for your inspiring example. I was diagnosed with PD two months ago. On top of that, I'm in my sixth week of radiation therapy for Prostate Cancer with the accompanying hormone meds (fatigue). Your attitude and example are helping me to stay positive and feel that I can beat both of these! I've been doing the fast-walking per John Pepper, plus a bunch of other things. I'll get a mini-tramp soon. I already understood the trauma link, having discovered my own about six years ago, as well as being a fan of Gabor Mate (I see his book on your site). I had not made such a precise connection with PD until reading your story (thanks!). You are a huge inspiration and have already helped to improve my life!

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October 19, 2021
July 28, 2021
Suggestions for Exploration
July 28, 2021

By Frederick Lowe

Your understanding of the many important factors that contribute to Parkinson's and the many practical suggestions on how to address them runs parallel to my learning over the last 5+ years. You are a man after my own heart. Love the Polyvagal theory knowledge. I knew somewhat of the importance of improving vagal activity, but not to the depth you have shown. Thanks. Totally agree with knowing how the Cell Danger Response is involved with being stuck in the inflammatory and alarm state. And few others besides ourselves appreciate the amazing role the fascial system plays in this, from head to toe. This is besides nutrition, movement, social interaction, meditation, breathing, eye exercises, inflammation, etc, etc. Big thanks for mentioning the Eye Guide. That looks amazing. Hope it is available in the U.S. sometime soon.


Now suggestions of a couple of things: 1). More exploration on the ramifications of mitochondrial dysfunction, all the factors that affect that, and how it can be addressed (so far, all genetic abnormalities affect mitochondrial function). 2) Learn about Stephen Kaufman's Pain Neutralization Technique work on rapidly, effectively improving vagal function. I believe it works reflexively via its effect on the fascial system primarily, but also probably the nervous system.

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July 28, 2021
June 20, 2021
Educative Posts
June 20, 2021

By Milan Hoste

Dear Gary, I really enjoy and admire your educative posts. Thanks to you my lectures at University and my private coaching are better.

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June 20, 2021
March 24, 2021
Parallels with Trauma
March 24, 2021

By Dennis S.

I am 45 years old and I was diagnosed with Parkinson’s in 2015, at an age of 39. I always thought about chronical stress as a possible reason for Parkinson’s and recently I discovered the Polyvagal Theory. I guess similar to you, the parallels between Trauma and Parkinson’s seemed to be quite obvious to me. I had the experience that Somatic Experiencing can be helpful. Later someone recommended your website to me and I feel excited that you see it like I do. Thank you for that. it is always good to know that someone is sharing your point of view. I will read through your articles.

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March 24, 2021
February 4, 2021
Correcting Dysfunctional Sleep
February 4, 2021

By Jacob Kidney, Essential Movements Yoga for Parkinson’s/movement disorders (ET/Dystonia)

I really love reading everything that Gary Sharpe has to write about his experiences with Parkinson's. He is always spot on. I know this is true from my own experience as well. My symptoms are always worse when I don’t sleep well. I love what he says here about sleep being the foundation for symptom reduction and moving in a positive direction.

So what can we do to have better sleep? I would love to hear what everyone does to help them sleep better.

For me, doing some sort of intense exercise earlier in the day and followed by a few different deep relaxation techniques/routines in the evening have dramatically changed my sleep patterns.

My sleep patterns were always very inconsistent all throughout college. Between working full time and full time school I would often go for three or four days at a time with only sleeping three to five hours per night. This pattern persisted for more than four years. It resulted in my tremors and overall health getting worse.

It has taken me two years of persistence to correct these dysfunctional sleep patterns to the point where I can manage my symptoms much more effectively and have begun to move in a positive direction.

This has been done by doing intense exercise every day. This can include biking, running,, hiking, weightlifting, yoga, etc. you need to effectively use the adrenaline in your body or else it is going to exacerbate your symptoms.

Then in the evening I will try a number of different things to help my body wind down and prepare it for sleep. This could include deep breathing, meditation, Yin Yoga, Restorative Yoga, and Yoga Nidra. I always have an air mister defusing essential oils and gentle soothing music while falling asleep.

Also, scheduling daily free time to rest and take a nap if I need it has been invaluable. Especially, right after doing intense exercise.

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February 4, 2021
October 27, 2020
REM Sleep Behaviour Disorder
October 27, 2020

By Darrell L.

REM sleep behaviour disorder (RBD) and the onset of PD

I stumbled on your site while probing the internet for info relating to a sleep disorder known as REM sleep behaviour disorder (RBD). This has been a fixture in my life since I was a child...and has continued into my middle-aged years (I'm 37 now). At times it's been a mere curiosity as it doesn't noticeably disrupt my life to any great extent; however, in the resent years I've been sharing a bed with a partner who is somewhat less of a deep sleeper...so I've been hearing more about my night-time adventures. The curiosity took a bit of a turn when my reading suggested that RBD is a very common marker for the onset of PD. Statistics range from 80-90% of those who develop RBD receiving a PD diagnosis within 10 years. Interesting. From there, I started to investigate possible therapies/treatments. Currently, the sleep disorder could be considered ideopathic. Very little is known about the origins. Aside from lifestyle changes (diet, exercise, caffiene/alcohol intake, sleep hygiene, etc.), Clonazepam is recommended. There's an aversion to this treatment for obvious reasons. Melatonin is another potential option, as is, full spectrum CBD. Beyond these suggestions, there's not much else; however, Clonazepam is used to treat anxiety, so it got me thinking about the potential emotional links that may be embedded in the disorder. This got me thinking about Gabor Mate and his book, ''When the body says No.'' So, with PD and Gabor, I found you!

Such a wealth of information. I've only just scratched the surface, but feel a wellspring of gratitude that it's here. Just delving into the Polyvagal theory...and trying to put together some ideas for a course of action. I don't know that I'll develop PD, but so much of the material here rings true for me...so it's got me thinking about what I can do now.

I'm wondering if you've got any material on this link that exists (PD and RBD)...or if within your network you've encountered those who have story that's similar to mine.

Thank you so much for sharing your own journey. Such a helpful resource.

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October 27, 2020
August 11, 2020
Yoga Therapy
August 11, 2020

By Theresa Conroy, C-IAYT (certified yoga therapist by the International Association of Yoga Therapists).

Gary Sharpe's website provides something invaluable to my Yoga Therapy clients with PD: informed, personal experience. My clients are engaged and knowledgeable about their disease, but they crave real-life input on treatments and wellness. Gary does that with clarity, style and humor. That's why his site is one I often use as a resource for my students.

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August 11, 2020
November 27, 2019
Strategies of Recovery
November 27, 2019

By Babs Meade

Thank you Gary ! Your work is informing my work and life. As a healer-bodyworker, neuromuscular integrative movement therapist, Acupuncturist nerd, Esogetic Colorpuncture person with neuroimmune issues - addressing trauma awareness and recovery for people. Trauma-shock, shake, Reaction Patterns, Adaptations, Addiction. Sorting these out...sorting out strategies of recovery. Nourishment, laughter, music, art, emotions, Soul, Body, Spirit... thankyou Gary Sharpe for your excellent life’s work

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November 27, 2019
September 3, 2019
Applications of Polyvagal Theory
September 3, 2019

By Olivia Streater Lavizzari

I spent the day reading your blog and videos -- SO profoundly MOVED AND AMAZED by what you are doing! It is incredible and wonderful. I wondered if you have the new(ish) book Clinical Applications of Polyvagal Theory. In the chapter on strokes by Deb Dana there is some great stuff that I think could also be applicable to PD. A lot of which you already cover in your blog; things like frozen facial expression etc. Very glad I came across and shared with my professor, who is researching use of Flamenco and Tango in dance movement therapy PD interventions.

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September 3, 2019
May 24, 2019
Hope and Inspiration
May 24, 2019

By Rick Potvin

Your site was the very first thing I read the day I came home from the neurologist with my diagnosis of PD. It gave me so much hope and inspiration that I started the very same day on program of strenuous exercise, diet, etc. I actually picked up my guitar, my one true passion, and thought I can do this. Two years latter I'm still doing it thanks to your insight, research and sharing of knowledge.

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May 24, 2019
February 7, 2019
Headed in the Right Direction
February 7, 2019

By Cheryl Nicholson

I’ve been very inspired by these posts. I have a Parkinson’s client who was in a wheelchair and who would crawl to get places. He’s now able to get up and walk to the washroom on his own. He even went out and shoveled his driveway. We are using targeted nutrition, intentional movements, red light intranasal therapy and Natural Bioenergetics to improve his life. He still has days where he goes backwards, but overall things are headed in the right direction. Many thanks for reporting on your own progress and providing information that helps others!

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February 7, 2019
September 10, 2018
Husband Diagnosed
September 10, 2018

By Kay Pyke

Did a quick search this morning and found the website which has so much info that I’ve been looking for. My husband has just been diagnosed and I’m researching how to help him. This is so inspirational and I’ve forwarded it onto our neuro physio. Oddly enough she came today armed with hand exercises which is what led me to this website. I’m in tears. So happy to have found you.

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September 10, 2018
September 10, 2018
Making Changes
September 10, 2018

By Adam M.

Gary, I want to say a huge thank you for your website! It has been a big help. I’ve changed my diet to fit Dr. Mischley’s recommendations generated by her research. I also bought the smovey rings. Right now I’m doing a Feldenkrais style movement intensive which seems to be helping.

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September 10, 2018
June 21, 2018
Craniosacral Therapy
June 21, 2018

By Sue Watson, Sue Watson Craniosacral Therapy

Hi Gary,
I am so excited to come across such a refreshing approach/understanding of Parkinson's sisease. I am a craniosacral and physiotherapist doing a bit of digging for useful info about gut health and P.d. for a client when I came across your website. I don't know if you have had any experience of craniosacral therapy, but big into the effects of whole systems harmony, polyvagal theory and impact on neurophysiology/psychoneuroendocrinoimmunological etc.

I have recently taken a career break from the NHS to follow my passion for cranial work and develop how I integrate the understanding that comes from cranial teachings with movement based practice. Your findings sit so in harmony with my experience. I have to say that I haven't gone out of my way to look further into similar approaches to P.d. - from what I see on you website, you appear to be pioneering a way forward - is this all your own research, or can you point me to other sources too?

I have worked with a number of Parkinson's clients very effectively, but - as is often the case with 'complementary' approach, the challenge is in embracing quite a different way of thinking - and the medication/grip of disease/anxiety and stress are powerful and seductive hooks. The gentlemen I am looking into gut health for has found after a couple of our sessions, but not all the time, he is able to play piano after 9 years of his tremor being too disruptive. Our next work is with me carrying out cranial work while he is playing and exploring the sensory experience/interoceptive experience of doing so - then looking at ways he can find balance and access that 'place' for himself.

We (therapists) do a lot of work with trauma recovery, establishing resources with - building stronger neural pathways to grounded/balanced CNS states etc., as well as the benefits of the hands on work itself. Familiar with Gabor Mate/Lavine/Roschild etc, all sitting comfortably with how trauma affects movement and inhibition of such.

My experience as a physio in the community has involved lots of work with Parkinson's and increasingly I see the effects of stress and the social engagement system being critical to understanding and improving movement, and in the last 3 years have done much more work with body awareness during activity, whether it be gaining flexibility or strength or balance. The toughest part is engagement especially when the general physio community is not promoting the same message. As you're website implies, it requires such a commitment to your well-being. I totally admire your perseverance and have empathy for how challenging it must be for you at times.

Is your approach being embraced by the professionals researching the rehab/recovery work? I would be really interested to hear more. You may be interested in the work of Body Intelligence/biodynamic craniosacral therapy, Pain is Really Strange (FB and blog site) - although name implies about pain, it's that full mix of what you have been exploring yourself (Steve Haines, craniosacral therapist).

Kind regards, Sue Watson (Scotland)

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June 21, 2018
May 27, 2018
Music is Medicine
May 27, 2018

By Consuela Harper

Gary, I love your approach, and the way you describe and illustrate it so well in this article. Watching the music and dancing video was a true delight. I also read your post about digital music as medicine, and wanted to comment on that because I felt so moved by it. I love this post so much!!! I can relate fully. I've said for a long time that music is medicine for my body. And it's a delight to see the videos of the effects of your music medicine on your body and spirit! :)

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May 27, 2018
April 26, 2018
Social Isolation
April 26, 2018

By Marva Lee Weigelt

What a revolutionary week this has been for me to integrate new understanding, launched by Gary Sharpe’s post about how trauma and chronic dysregulation affects other people’s perceptions of us in social situations. I had a giant aha that helped me understand and have compassion for my own mysterious social isolation as a child and well into adulthood.

Integrating that with my increased awareness after taking a class a year and a half ago and staying in touch through groups like this, I am able to understand that honing my interoception skills allows me to recognize virtually instantly when I am in the presence of a dysregulated person. I’m sure I’ve always done this, but without the comprehension of what’s happening.

I am using this raised awareness to great advantage in my peer support practice, and also observing how I am assisting others with cor-egulation.

Then, last night, in a community ukulele group I lead, I could understand why I was reacting as I was to a young woman who is a beginning player. It is quite clear that the rest of the group is having a similar reaction to her. In fact, one player stayed afterwards to talk to me privately about how the awkward young woman made her feel unaccountably “nervous.” I was so happy to have the language and concepts to help her understand what I thought was happening at the nervous system level. Then she said, “I used to be that way myself,” and I knew I had a new ally in building compassion instead of following the natural, but heartbreaking impulse to avoid and exclude this young person."

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April 26, 2018
March 31, 2018
From Malta
March 31, 2018

By Mildred Atanasio

Hello Dr. Sharpe, I am very glad I came across your videos and messages on facebook! I just want to say a huge thanks as all your info is very useful. My mum was diagnosed last year. In Malta, even medication is limited. But anyway, I have lately also started helping out with managing the page Malta Parkinson's Disease Association, which tries to bring Maltese people with PD (and others) together. I find your articles (and especially your improvement) very admirable and much more helpful! Thank you once again.

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March 31, 2018
March 6, 2018
Impactful Discoveries
March 6, 2018

By Julie Brown Sheil

I really admire this man. Gary Sharpe is a Warrior in the fight against Parkinson’s Disease.

He has been tirelessly researching therapies and documenting their effects along the way so that others can witness how he is healing himself. He also shares them with the world so that others can benefit from them, too.

He has refused to let doctors convince him that there’s nothing that can be done to slow or reverse symptoms. He has refused to become a victim of, or defined by, his disease. The best part is, he’s winning. He’s improving his quality of life (and that of others).

I follow Gary because once I found out I had neurological disease from Post-Concussion Syndrome, I began researching ways to help myself. Even though I don’t have Parkinson’s, I do have a chronic disease and I have found all of Gary’s insights (listed below) to be true in my case as well. Doctors don’t know everything. Specialists only know their specialty. Doctors chase symptoms rather than chasing the cause of the symptoms. Patients who are intimately involved with their own healing do better. Patients who think outside the box can make some impactful discoveries, not only for themselves, but for others.

It’s a sad state of affairs that patients are left to navigate their own recovery and healing. But it can lead to some amazing discoveries.

Gary is the reason I started my Mind Matters Mondays posts. I want my journey to be able to help others, to make it a little less likely that someone will have to struggle to find answers or relief the way I have.

Thank you, Gary, for all that you do!

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March 6, 2018
March 6, 2018
Co-Regulation
March 6, 2018

By D. Hutton

I experience chronic pain on a daily basis due to chronic disease. Chronic pain is mentally and physically exhausting. Part of my self care is co- regulating my nervous system with my husband everyday. We sit quietly, calmly together and observe how our bodies feel, just breathing/existing. We are in physical contact, sitting on the couch. We practice observing how our thoughts, conversation and emotions affect our nervous systems. Sometimes I get very anxious if he shows empathy when I don't want it. Sometimes we just sit quietly. I actually resisted the co regulation aspect of the poly vagal theory, but you were so persistent with this information that I finally tried it out. Life is so much better now!! Thank you for your persistence, dedication, and information Gary Sharpe!

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March 6, 2018
February 6, 2018
Outstanding Information
February 6, 2018

By Brandon Knight

Outstanding information, you are very helpful as you explain what you are feeling in a clear way. Thanks for putting in the effort to make these. Disconnect between the brain and body feels about right to me and I will be making some devices for myself to test out. Just started with sinemet and I am 40 so far it has been a big help my right foot has been about like yours since I was 34. I am not even sure if I have Parkinson's maybe some other dopamine issue have dat scan scheduled seen multiple neurologist and they have not been able to pin it down they are going off medication response at this point thinking it might be a dopamine responsive dystonia. Any way just wanted to thank you for putting these together and explaining that the medication on its own will not be enough. The sinemet gave me to mobility to move with less pain so I can work out again as well as helped me think more clearly but I do believe that it is what you do with the room the medication buys you that will make the difference although I understand we are all different. Thank you again for posting these they do help.

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February 6, 2018
January 21, 2018
Slowing Down Progression
January 21, 2018

By Simon Clarke

I came across your website at a very opportune time - much of your research, information and experience corroborate my own. Many of the PD symptoms (before and after life hacks) you demonstrate in your videos bought a smile to my face, seeing someone else taking a proactive role and showing real progress. Thank you!

I was diagnosed with idiopathic PD at the age of 48. As you know- getting that diagnoses and prognosis ruined my day... and the rest of my life (or so I thought). I went through the various stage of grief and went on Meds with resignation to my fate.

However about 2 years after diagnoses, I had an epiphany (of sorts) and realised I no longer needed to be a victim as there must be some way of alleviating and/or slowing down progression. This led me to shiatsu, yoga, yin tuinna, mindfulness, meditation and to Zhineng QiGOng which I have been doing for the least 2.5 years with great success. During this time, I have searched the web relentlessly (PD trait!!) and come across some useful info..

However I think your website is one of the most comprehensive resources I have seen of all the information and practical, holistic guidance collated in one place. It’s a very useful place to start when looking for a way through PD that encourages the understanding and healing of the entire BodyMind system.

The last week I have been reading Norman Doige's book-the brains way of healing. Full of good information

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January 21, 2018
October 25, 2017
Exploring All the Potential Causes
October 25, 2017

By Ken Howard

May I also add my humble gratitude for all you are doing to help us tackle Parkinson’s. In a recent “Live Loud” session organised by the Cardiff branch of Parkinson’s UK, we were asked to nominate someone who has inspired us to fight against this pernicious disease. I nominate you, Gary! You have shown me that we should not give in and accept the inevitable, but should keep on fighting! Rule 1 in any battle is “know your enemy”. You have been tireless in exploring all the potential causes - physical, chemical and psychological, and sharing your findings with us. Secondly, you have amazed us with your enthusiastic approach to trying any potential treatment, no matter how obscure it may seem. I am trying out many of these, principally the exercise, diet and mindfulness related therapies. These have helped me significantly, and I’m particularly interested in your research into the Vagus nerve issues. Please keep up the good work - I shall keep on fighting with you!

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October 25, 2017
September 10, 2017
Can-Do Attitude
September 10, 2017

By Tina Gebhart:

Gary, I may have been researching before finding your page, but your consistent encouragement, posting of your supplement and exercise trials, and general can-do attitude have been super motivating for me. I would not have gone gangbusters on this fish oil and fasting thing if I had not seen your experimental models. I may not have built up the nerve to go against my first neurologist and then find a better, awesome one. Thank you a million times over. I consider you my big brother, as sappy as that may sound.

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September 10, 2017
August 28, 2017
Connecting the Dots
August 28, 2017

By Gregory Layer:

Gary, you are a gift to this world. Your effort to connect the dots of our daily life and daily choices to our long term health and how disease manifests in our bodies is making a huge difference in my life. I am inspired by your work but more importantly, I am inspired by the spirit with which you share your experience with others. Keep up the great work and know that you are loved and appreciated, just as you are!

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August 28, 2017

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