How I Bounced Back After Parkinson’s Diagnosis to Make US National Rowing Team, by Todd VogtRead More
By Stefania Lungu, contributing author and person with Parkinson’s Disease.
“I am 66 years old and this is my story. I strongly believe that almost all major illnesses have deep roots in some traumas/shocks we have at certain moments of our lives, which we were not able to “digest”. All my emotional traumas are related to members of my family. My first shock was back in 1994, when I was alone with a little child to raise. Knock-knock, depression installed itself immediately and I was not able to recognize it and give it a proper treatment. I was very angry, and afraid that I would not be able to cope with all my problems. Yet, in all the critical moments of my life, I received from seemingly nowhere some help from ”above”, and somehow I managed to solve step by step the problems which arose, even when I remained jobless in 2000, and by miracle an old tennis friend helped me to find a new job in a bank, that help restore confidence in myself.”Read More
An early discovery in pursuing whole-body movement as the principle therapy for increasing my range of motion, re-connecting body and mind, and integrating Primitive Reflexes, was the importance of holding something in my hands as part and parcel of the therapy, thereby enhancing the Applied Neuroplasticity and Somatic Experiencing benefits of movement.Read More
The purposes of this article, which I will endeavour to keep updated, is to act as a central resource of information on light therapy and its applications to Parkinson's Disease.Read More
I was actually very hesitant to use the term “mental health” in the title of this article, or indeed to refer to it this at all. My research into human biology and the human experience, as well as the results of my own self-experiments, have proven to me that the separation of health into “mental” and “physical” is a complete red herring, as is the separation of “mind” and “body” more generally. Indeed, I have found that most beneficial therapies for quietening my mind have been physical ones. I would refer to the main self-directed therapies which worked best in the regard as of the "Somatic Experiencing" type, especially dance therapy, "smovey ring" exercises, body-movement mindfulness, and using a rebounder and a whole body vibrating plate machine - I feel these all helped.Read More
In this sequel, we examine more closely the issues that an imbalanced brain function causes, in particular when the left brain is overly dominant, and show that there are strong correlations with the major motor and non-motor symptoms and real lives of people with Parkinson’s Disease. We will also explore links to Dorsal Vagus Nerve mediated immobilization.Read More
In this article, I would like to return to this topic, and concentrate this time on that primitive, reptilian branch of the Vagus Nerve, and its potentially central role in Parkinson's Disease.Read More
I have since been considering what Iain McGilchrist’s “Divided Brain” work has to teach us, in the context of trauma and chronic illness, and seeking to employ both hemispheres of my brain in thinking about this. I began to see how Iain’s work provides us with a vital missing part of the puzzle. Indeed, his concept of the "Divided Brain", I now feel, connects so very many of the pieces, and I will endeavour to contexualize and map out my thinking on this here.
As for many people with young onset forms of Parkinson's Disease, my diagnosis was given the label "Idiopathic". This term, Idiopathic, is used to denote any disease or condition which arises spontaneously or for which the cause is unknown. This diagnosis was wholly unsatisfactory to me, as I'm a person who needs to know the "why" of things.Read More
Tennis seems to be the perfect exercise to help PD - the hand-eye coordination, sudden quick movements, the thinking process used to execute a shot. I now play most days - mainly doubles - for up to three hours. Luckily, our club has a lot of members so there’s never a shortage of people to play with. And the strange, but rewarding part is that my game is getting better! Four years ago I would never have dreamt that I would be winning club competitions and playing matches for my club in the Leicestershire league. I started playing tennis shortly before being diagnosed in my early 50s, enjoying coaching sessions and playing a couple of times a week with my children.Read More
This article explores how I've found that persistent and targeted "neural exercises" can progressively reduce various symptoms/problems of Parkinson's Disease, through neuroplastic processes. In particular, here I will demonstrate specific neural exercises, and how I have significantly improved my own quality of life through pursuing these persistently over time, via entries from my video diary which are interspersed through the article.Read More
In this article, we explore a technology which has proven helpful for people with PD, and may work by helping to modulate or quieten these abnormal brainwave patterns.Read More
The purpose of this article is to review the outcomes from employing the pragmatic solutions, covered on this website, for working towards progressive symptom reduction of Parkinson's Disease. In particular, I discuss the outcomes of the persistent practical applications on myself, and demonstrate the improvement through the records of my Video Diary.Read More
While most people will be familiar with the external, physically manifest symptoms of PD, very few have a good grasp of these internal, hidden states, and so don't realize that people with Parkinson's (PwP) are also frozen, rigid and trembling on the inside too. Having engaged with very many PwP around the world, I've learned that there are common personality types, and we tend to have shared, overarching themes of internal emotional states. In particular, I've found that many of us can be described as high achievers, but are wracked with self-doubt and guilt on the inside. This finding appears to especially true in the cohort of PwP who eventually end up with a rigidity dominant form of Early Onset Parkinson's Disease.Read More
A friend suggested I write more about what Parkinson's Disease is like "on the inside". At the same time, I was researching the different senses of the human body, and the problems which can occur with these in PD. In this article, I attempt to to tie these two threads together.Read More
Pragmatic answers for people with Parkinson's Disease can be gleaned by understanding that one of our fundamental problems is that we're stuck in the Freeze or "Playing Dead" stress mode of our parasympathetic nervous systems. This renders us completely unable to relax, which then necessarily leads to increasing inflammation and toxification of our brains and bodies, with the resulting increase in pain making us ever more stressed - a very vicious circle. Hence re-learning how to relax has to be a principle goal in our recovery: to regain the knowledge of how to switch our "rest & digest" parasympathetic nervous system back on for prolonged periods.Read More
By Penny Mitchell, Independent Knowledge Worker and Health Reseacher, diagnosed with Early Onset Parkinson's Disease.
"This article is based on a series of posts which I shared in the Parkinson's Disease Fighters United (PDFU) Facebook Group. Gary Sharpe asked me to contribute these as an article, and I am happy to share here too, in case other people with Parkinson's may benefit from my journey and experiences."Read More
In this article, we explore, with the assistance of my friend and mentor, Cheryl Townsley, Health & Wisdom Coach, how the concepts of stress interruption and nervous system resetting help us understand why walking, cycling and dancing - exercises that inherently involve mobilization of the ankle joints - are so beneficial for People with Parkinson's Disease (PwPs), and why we need to keep practicing these regularly.Read More
My background is law – patent law – not science, but with engineer Steve Walpole I have spent a great deal of time studying the brain and developing new technology which can measure and influence the brain, andm as part of this, I have been observing people with Parkinson’s.Read More
Then something profound and disturbing, but extremely important happened. As I was sitting there, I switched into a deeper "off" state - one in which I zone out completely, lose myself, the brain fog descends, I stiffen up and become rigid, eyes glaze over, I withdraw from the world. hat happened next was extraordinary.Read More