Pragmatic answers for people with Parkinson's Disease can be gleaned by understanding that one of our fundamental problems is that we're stuck in the Freeze or "Playing Dead" stress mode of our sympathetic nervous systems. This renders us completely unable to relax, which then necessarily leads to increasing inflammation and toxification of our brains and bodies, with the resulting increase in pain making us ever more stressed - a very vicious circle. Hence re-learning how to relax has to be a principle goal in our recovery: to regain the knowledge of how to switch our "rest & digest" parasympathetic nervous system back on for prolonged periods.Read More
In this article, we explore, with the assistance of my friend and mentor, Cheryl Townsley, Health & Wisdom Coach, how the concepts of stress interruption and nervous system resetting help us understand why walking, cycling and dancing - exercises that inherently involve mobilization of the ankle joints - are so beneficial for People with Parkinson's Disease (PwPs), and why we need to keep practicing these regularly.Read More
Although the seven stage framework has been developed to describe acutely applied short duration stress, without any reference to PD, the very same framework also describes well the declining state of a PwPs body over time - if the disease is allowed to progress. Therefore, we believe that not only are PwPs permanently stuck in such stress response states, the degree of the stress that we are stuck in also moves through the stages as our situation is allowed to degenerated.Read More
I have been reading Dr Jim White's "Stress Control" afresh, but now from the perspective of a Person with Parkinson's (PwP). This is a course written about stress itself, without any reference to or context in Parkinson's. Yet, anyone affected Parkinson's who reads it will be very familiar with what they find. I will be writing extensively on this subject, but to set the scene, first I would just like for us to consider a list Dr White provides which covers how stress can affect the body. People affected with Parkinson's the world over will recognize very many of these as the acute symptoms of their condition - but remember here Dr White is writing purely about Stress.Read More
Deb had the unique insight that a kind of stress ball (a squeezy, bouncy ball which fit the human hand well) which comes with an attached elastic string and a velcro finger or wrist strap would be hugely beneficial. She based this on our discoveries of how some hand-eye co-ordination movements are relatively easy for people with Parkinsonsim's. She was right!Read More
There is a beast inside me. The beast is not my Parkinson's illness. The beast is myself. Parkinson's is just the empty cage. Let me explain, because although this is difficult reading, I believe it is important to share this epiphany.Read More
Here at Out-Thinking Parkinson's, it is our mission to help not only People with Parkinson's, but also the people who love and care for them, those who also have, in a very direct way, their own lives touched by the disease.
One of the most valuable contributions we can make, we feel, is simply to express the feelings and thoughts of what it is like to be a person affected by Parkinson's or to care for someone with the disease. We hope this humanization of PD will help others in the same situation come to terms with living with the disease and bring new understandings for the wider community too.Read More