By Penny Mitchell, Independent Knowledge Worker and Health Reseacher, diagnosed with Early Onset Parkinson's Disease.
"This article is based on a series of posts which I shared in the Parkinson's Disease Fighters United (PDFU) Facebook Group. Gary Sharpe asked me to contribute these as an article, and I am happy to share here too, in case other people with Parkinson's may benefit from my journey and experiences."
Read MoreIn this article, we explore, with the assistance of my friend and mentor, Cheryl Townsley, Health & Wisdom Coach, how the concepts of stress interruption and nervous system resetting help us understand why walking, cycling and dancing - exercises that inherently involve mobilization of the ankle joints - are so beneficial for People with Parkinson's Disease (PwPs), and why we need to keep practicing these regularly.
Read MoreOne of the more persistent problems I encounter regularly (daily) are episodes of severe brain fog, during which "Gary has left the building", my breathing becomes very shallow and I can only lie down due to my balance going completely. These episodes typically occur in the early evenings and/or after my main meal, when my stomach is full.
Read MoreAlthough the seven stage framework has been developed to describe acutely applied short duration stress, without any reference to PD, the very same framework also describes well the declining state of a PwPs body over time - if the disease is allowed to progress. Therefore, we believe that not only are PwPs permanently stuck in such stress response states, the degree of the stress that we are stuck in also moves through the stages as our situation is allowed to degenerated.
Read MoreMy background is law – patent law – not science, but with engineer Steve Walpole I have spent a great deal of time studying the brain and developing new technology which can measure and influence the brain, andm as part of this, I have been observing people with Parkinson’s.
Read MoreThen something profound and disturbing, but extremely important happened. As I was sitting there, I switched into a deeper "off" state - one in which I zone out completely, lose myself, the brain fog descends, I stiffen up and become rigid, eyes glaze over, I withdraw from the world. hat happened next was extraordinary.
Read MoreI first discovered the Vagus Nerve (VN) when I was researching how Parkinson's Disease begins in the gut: "Braak's Hypothesis" of the disease states that the problem spreads from its origins in the digestive tract to the brain, using the Vagus Nerve as the conduit. My interest was further piqued when I read that people who had had their VN severed via a vagotomy - a surgical "solution" for stomach ulcers - appeared to have significantly less likelyhood of developing PD.
Read MoreAs many forms of PD begin in the gut, and only later migrate to brain, the initiating and causal gut problems will still remain too after the brain damage has occured. We will certainly need to address these digestive tract issues, therefore, if we are ever to fully heal. In my view, even if we could correct the resulting brain problems tomorrow, if we do not also attend to the original causes which reside in gut then we will not be "fixed" for very long.
Read MoreFor People with Parkinson's, there is something very strange about the feedback between our brains/bodies and our immediate environment. The choice of clothes, in particular, can affect symptoms. In this article, I cover why consideration to clothing is an important part of living well with Parkinson's.
Read More"Smovey Rings" are a general health and wellness tool that combine exercise and vibration, which have particular beneficial applications for Parkinson's Disease. Indeed, these hand held "rings" were invented by Johann Salzwimmer, an Austrian Tennis player and a person with Parkinson’s, who actually initially designed them specifically to help himself. So it is not hard to understand why these are proving beneficial now with many other people who also have neurological conditions.
Read MoreI set about seeing if there was anything which could provide even more of an anti-histamine effect over just the nasal wash out method described above. I was wary of taking anti-histamine drugs, because I'd read these might make things worse with long term usage. Being an afficinado of the use of light for medical problems, I did some more research and discovered there are little red light - or even infrared - gadgets which you can stick up your nose to create anti-histamine effects, and that this idea was based on sound science!
Read MoreProfile of Dr Laurie Mischley: a new breed of naturopathic doctor, not only able to prescribe medication, but also fully educated in dietetics and nutrition. Laurie specializes in helping clients with Parkinson's Disease, and is working at the cutting edge of research on the disease. The purpose of this post is to further highlight the work of Dr Mischley, and also the benefits of choosing a holistic PD doctor. For updates or news, follow Laurie's facebook page.Write here…
Read MoreMy colleague David Spry is helping people with Parkinson's Disease get symptomatic relief using nutritional therapies. In particular, he is undertaking extremely careful and holistic research on a nutritional-genetic issue, in which people with a specific gene profile are not only very prone to nutritional deficiencies related to “melthylation” and "folates", but also that this makes them highly susceptible to a wide spectrum of food intolerances. David is revealing the role these issues play in the motor and non-motor symptoms associated with PD, and is demonstrating that, by addressing these, significant improvement can be acheived in the condition of people who have developed Parkinsonism’s in this genetic class. Most importantly, David has pioneered this approach by testing out his conclusions on himself.
Read MoreTaking these ideas forward, I went on to research the linkages between histamine and dopamine, and thus began to form a picture, with the logical conclusions that allergic/inflammatory reactions and Parkinson's Disease are, indeed, very strongly linked. Here's what I uncovered.
Read MoreMy career was cut short by Parkinson's Disease. I lost my Great Love, my life's pursuit and have had to grieve. To change and adapt, to evolve once again or perish. I'm currently lost, at sea, not sure what to do or what I am capable of. Yet Dave has found his Calling, in his family and his career. Very bravely, he formed his own business, Raptorxotics. He has squared his own circle and now his animals, family and work are one.
Read MoreIn fact, the possibilities to fine tune light therapy for PD through such wearables is now immense. For example, the Propeaq glasses already come with an app which allows the timings of the therapy to be programmed in: Toine is helping Olympic athletes achieve peak performance at the scheduled times of their events! They also already come with interchangeable tinted colors, including red for increasing melatonin: currently, these are used when the wearables are applied to combatting jet lag, for example.
Read MoreA number of important studies have now clearly demonstrated that strategic use of light therapy can be highly beneficial for people with Parkinson's. Recent studies aimed mainly at addressing the poor quality of sleep associated Parkinson's, as well as those aimed mainly at addressing depression in people PD, are alsp inadervently showing improvements in the motor symptoms of the participants too. It is believed this is because strategic light therapies are actually helping to restore the natural balances between dopamine and melatonin and restoring the Circadian Rhythm.
Read MoreLike many, people with Parkinson's, I had completely stopped listening to music some time before diagnosis. This "closing off" or withdrawal from the world of the senses is one of the running themes which I have found in talking to very many people with Parkinson's. But whenever I see people with other neurological conditions like Alzheimer's on the TV, invariably they seem to be existing in silence, and have forgotten the music that one made them come to life. Even quite recently, I could not recall seeing people with such conditions, as shown in the reality of their lives, with music even playing in the background, and certainly never saw them with a personal choice of music, carefully chosen to stir all sorts of memories, being played loud directly in their ears via digital headphones. Thankfully, the profound impact of music on people with neurological illnesses, such as Alzheimer's and Parkinson's is now coming to the fore.
Read MoreThe very first drug I was put on after my diagnosis was ropinerole [dopamine agonist]. It was only marginally effective. So my original neurologist kept bumping up the dosage until it made me vomit and have diarrhoea, cold sweats and such dizziness that the only thing I could do was lie down. The neurologist's solution was to put me on, in addition, anti-nausea medications permanently. Later, I self-discovered this class of anti-nausea drugs are not supposed to be used long term.
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