I recommend anyone interested in Parkinson's Recovery to take a look at Jim Kennedy's research and follow his journey of self-experimentation into NMT. You will find Jim to be very positive and upbeat - no doubt because he has chosen to fill his life with music. You can follow Jim's work via his Facebook Page.
Read MoreThe Overlaps Between Stress and Parkinson's Disease, Part 1
I have been reading Dr Jim White's "Stress Control" afresh, but now from the perspective of a Person with Parkinson's (PwP). This is a course written about stress itself, without any reference to or context in Parkinson's. Yet, anyone affected Parkinson's who reads it will be very familiar with what they find. I will be writing extensively on this subject, but to set the scene, first I would just like for us to consider a list Dr White provides which covers how stress can affect the body. People affected with Parkinson's the world over will recognize very many of these as the acute symptoms of their condition - but remember here Dr White is writing purely about Stress.
Read MoreA Helping Hand with Movement Recovery Exercises
In my previous diary entry, I showed, by developing our ideas about incorporating balls-on-elastic into our gentle movement therapy, how we came up with a simple exercise regime to open up the fingers of my hands. In the sequel video included in this post, it is becoming ever clearer that our concept of "applied neuroplasticity" does work. Here, I demonstrate the further evolution in my own movement, resulting from practicing these ideas over and over again.
Read MoreFocusing on Wellness: A Companion's Piece
I have been able to make it to my mid-forties without sitting on the opposite side of a diagnosis desk. There is a whole lot of luck involved, but also a belief that I am in charge of my own life, health, and wellness. I have always paid attention to my body. I understood that body and mind are in a partnership that constantly needed to negotiate. I have always seen the signals of pain, tiredness, and wellbeing that my body gives me as an integral part of how I needed to plan my days and live my life.
Read MoreImpacts of Diagnosis on Parkinson's Disease
I hope that my experience might be a catalyst for change, because, in speaking with a significant network of people with PD around the world, there are many with diagnosis and aftercare treatment experiences even poorer than my own. I feel, therefore, we do need an overhaul of how the healthcare diagnoses and treat people with Parkinson's. Simply stated, the current experience of too many PwP (People with Parkinson's) is that they are prescribed drugs as a singular treatment pathway and given a narrative of hopelessness at diagnosis.
Read More
Movement Recovery with Yo-Yo Stress Balls
Deb had the unique insight that a kind of stress ball (a squeezy, bouncy ball which fit the human hand well) which comes with an attached elastic string and a velcro finger or wrist strap would be hugely beneficial. She based this on our discoveries of how some hand-eye co-ordination movements are relatively easy for people with Parkinsonsim's. She was right!
Read MoreThe Beast Within and Parkinson's Disease
There is a beast inside me. The beast is not my Parkinson's illness. The beast is myself. Parkinson's is just the empty cage. Let me explain, because although this is difficult reading, I believe it is important to share this epiphany.
Read MoreWaking Up the Senses and Parkinson's Disease
As I've improved my condition, both mental and physical, I'm more able to tune in to what is actually happening in my mind and body when the Parkinson's takes hold. As I've pushed the envelope of my understanding and incorporated more interventions into my own life, tested, tried, self-experimented, it has become clearer to me...
Read MoreLearning How to Walk Again with Parkinson's Disease
.People with Parkinson's tend to shuffle when we "walk". We take very small steps, hardly lifting our feet off the floor at all. We often trip over things and lose our balance. It is part and parcel of that terrible posture, the stooped over "Parkinson's Stance", which many of us develop when we do nothing to correct it. The resulting "Parkinson's Shuffle" is an extremely inefficient way to move around and is so very tiring.
Read MoreParkinson's Disease: A New Hope
In this video, I want to begin to show you what happens when we start to integrate the Out-Thinking Parkinson's strategies into new combined interventions and that, indeed, the whole quickly becomes much greater than the sum of the parts. This, then, represents the Out-Thinking Parkinson's whole. I carried on playing with these ideas for some time after making this video. And then I laughed. I laughed long, loud and deep. It was the type of laugh which hasn't left my lips in over seven years. This is why I decided to call this "A New Hope", because not even PD can withstand the power of Giggles and Glee.
Read MoreBall Game Based Therapies for Parkinson's Disease
A very simple, but extremely effective therapy for movement recovery and progressive symptom reduction in Parkinson's Disease is to incorporate playing with balls of various types, sizes and textures. The hand-eye co-ordination and sensory feedback seems to open up access to movement considerably, presumably because it brings in other pathways and regions of the brain in to help.
Read MoreThe Dyskinesia Control Hat
This is an earlier video (from 12th February 2016) which we never fully released due to the not-so-good quality of the picture and sound. However, this week I received a tweet from Selfie4Parkinsons about a campaign to raise awareness of Parkinson's, which asks people to take a “selfie with something silly on your head” and then share it to social media. This reminded me of our Dyskinesia Control Hat concept which we had developed through self-experimentation. As I indicated in my reply to the tweet, I have something not only silly, but also quite profound on my head regularly!
Read MoreWhy People with Parkinson's Should Share Their Stories
PwP and their primary carers have an enormous collective wisdom about the disease. The sum total of this hard won knowledge is immense. Dismissing anecdotal evidence is fraught with peril, because it can often lead to people then being coy about sharing their own experiences if it is contrary to the dogma. When enough anecdotal stories are combined, they can become the complete narrative itself. So we encourage PwP everywhere to share their acquired wisdoms and to understand that, together, we are the Experts in Ourselves.
Read MoreBoxing Exercises for Movement and Balance Recovery
I had an amazing afternoon learning boxing at Rock Steady Boxing Seattle and the best part of the whole process was the support that all the participants gave to each other. I met the owner, Karen Johanson, via LinkedIn, and since I live in Seattle, and have an interest in exploring all avenues to help People with Parkinson's, I sent her an email and asked to meet. She was very welcoming and I offered to show up and volunteer in anyway needed so I could get an in-depth understanding of what a class entailed.
Read MoreThe Story of Out-Thinking Parkinson's
During the first several months of Out-Thinking Parkinson’s, the video diary shows how far we’ve come. Not only have we demonstrated dramatic reversals to my symptoms, but also shown how our original thinking and ideas can improve quality of life: as Deb told me at the start, wellness can indeed be achieved through simple quality of life interventions, which anyone can try at home. The website is going strong. We are currently creating a series of magazine style themed Digests, simply because the sheer amount of information in this blog and articles we have published elsewhere has become somewhat overwhelming. By collecting these into themes we hope our research will remain accessible to new and old readers alike.
Read MoreReversing the Symptoms of Parkinson's Disease
It is and has always been my desire that this video record will be used to inspire people to unlearn their learned helplessness when it comes to living with Parkinson's Disease, to open eyes to the truth. There really is nothing special about me, apart from perhaps the steel of my determination. This is the appliance of science, engineering and wellness research in action. So I hope you will help us to spread the word that there is everything to play for in reversing the symptoms and the decline of Parkinson's.
Read MoreVitamin D for Potential Neuroprotection
“Vitamin D is a steroid hormone that plays a vital role in calcium and phosphate absorption. In recent studies, several associations between low levels of vitamin D, and neuropsychiatric disorders have begun to surface....including Parkinson's”
Read MoreCoconut Oil and Parkinson's Disease
Back in march 2016. I started melting a teaspoon of pure coconut oil in to my hot tea, two or three times a day. I'd heard seemingly miraculous things about this unique natural oil. For me, the results and benefits were immediate and unambiguous. Some time after taking that first drink, I encountered my initial taste of something I'm calling "coconut clarity". I would describe this experience as the clearing of the "brain fog" associated with Parkinson's - that lack of ability to concentrate and sluggish thought processes. But it was also about the clearing of the mists of depression and anxiety. I felt happy. Not manic, not bouncing of the walls, but just happy. I also felt my eyes widen.
Read MoreBat and Ball Therapy for Parkinson's Disease
A simple bat & ball set was just about the first thing I bought when I started exploring toys which could help me unlock movement to start pushing back my Parkinson's Disease symptoms. Once I began to play with them while my PD drugs weren't working - in an "off" state in which I didn't have my much access to movement - it was a complete revelation! The shear degree of movement that suddenly came back in just playing "keep it up" with the bat and ball was a joy, especially in terms of neck movement and core rotation. The fact that while I was doing it, much of my other symptoms (rigidity, unfocused eyes, breathing problems, pain) went away, at least in the moment of play, was massive in re-thinking about my condition, and how to live well with it.
Massageable Magnesium for Relaxing Muscles
For me this intervention has been highly beneficial and really helped me to re-open the pathways to movement we have since developed. I also believe, that having used it daily for over a year now, it has had a cumulative repair effect. However, back at the start, I had been describing to Deb how, when the Parkinson’s stiffness and rigidity of muscles took hold (Bradykinesia), the very worst part was the pain in my shoulders.
Read More