When the ambulance arrived, the paramedics were sympathetic and could immediately see I was indeed in a terrible state. They agreed things were so bad that I needed to go Accident & Emergency (A&E, the equivalent of the ER in North America) with them immediately.
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Light Therapy and Parkinson's Disease
The purposes of this article, which I will endeavour to keep updated, is to act as a central resource of information on light therapy and its applications to Parkinson's Disease.
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The Divided Brain and Parkinson's Disease, Part 2
In this sequel, we examine more closely the issues that an imbalanced brain function causes, in particular when the left brain is overly dominant, and show that there are strong correlations with the major motor and non-motor symptoms and real lives of people with Parkinson’s Disease. We will also explore links to Dorsal Vagus Nerve mediated immobilization.
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The Dorsal Vagus Nerve and Parkinson's Disease
In this article, I would like to return to this topic, and concentrate this time on that primitive, reptilian branch of the Vagus Nerve, and its potentially central role in Parkinson's Disease.
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The Divided Brain and Parkinson's Disease, Part 1
I have since been considering what Iain McGilchrist’s “Divided Brain” work has to teach us, in the context of trauma and chronic illness, and seeking to employ both hemispheres of my brain in thinking about this. I began to see how Iain’s work provides us with a vital missing part of the puzzle. Indeed, his concept of the "Divided Brain", I now feel, connects so very many of the pieces, and I will endeavour to contexualize and map out my thinking on this here.
Diminished Aliveness and Parkinson's Disease
Perhaps it would be instructive at this point, therefore to describe more about what its like when I am very symptomatic, to help understanding of why I believe this disease truly corresponds to Death Feigning, and why the converse - increase Aliveness - is the key route to healing. In Death Feigning, not only movement is switched off, but as are all signals through which the keen sense of predators might detect some vestigial signs of life. To me, this describes exactly how it is when I am symptomatic - if I don't implement strategies to combat this state and just allow it to take over - and the more symptomatic I am, the more pronounced these experiences:
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Developmental and Shock Trauma and Parkinson's Disease
As for many people with young onset forms of Parkinson's Disease, my diagnosis was given the label "Idiopathic". This term, Idiopathic, is used to denote any disease or condition which arises spontaneously or for which the cause is unknown. This diagnosis was wholly unsatisfactory to me, as I'm a person who needs to know the "why" of things.
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Loneliness, Social Isolation, Estrangement and Parkinson's Disease
"The single biggest predictor of rate of Parkinson's progression is if you answer true to 'are you lonely'?" This finding by Dr Laurie Mischley, who monitors the progress of symptoms of more than 1500 people with Parkinson's Disease is perhaps one the most tragic aspects of the disease in our modern society, in which we people with PD may find ourselves heading toward this outcome by default. Indeed, I have lost count of the number of people with PD who have said something to me along the lines of "my friends and family have abandoned me/don't visit/lost touch". The negative feedback loops between loneliness and disease progression can be one of the most vicious circles of PD. I speak from personal experience also, because at my lowest point, I too had become very isolated, virtually alone in the house and barely going out.
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Yoga and Parkinson's Disease
A consideration of what I’ve learned from my teachers (Achayras). So much I could talk about! Hope, purpose, a sense of letting go. An altogether holistic/total yoga approach. The overall learning message I've taken from my teachers is that it is this combination and integration of approaches which is most effective: nutrition, hydration, movement and emotional well being.
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Pulsed Electromagnetic Field Therapy for Parkinson's Disease
In this article, we explore a technology which has proven helpful for people with PD, and may work by helping to modulate or quieten these abnormal brainwave patterns.
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Busy, Anxious Thoughts and Parkinson's Disease
Many people with PD (PwP), and caregivers will also be well aware of this, often encounter an almost constant chatter of busy thoughts in their own heads. This inner voice can speak in undertones of self-doubt and guilt, but also can be constantly seeking to blame others, marshalling arguments and self-justifications. These thoughts can go round and round like a tape stuck on a loop, and be very difficult to break out of. Indeed, PwP can become irritable when someone seeks to interrupt these thoughts. These anecdotal experiences have now been backed by science too. A recent article in "Nature",
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Self-Doubt, Guilt, Inner Voices and Parkinson's Disease
While most people will be familiar with the external, physically manifest symptoms of PD, very few have a good grasp of these internal, hidden states, and so don't realize that people with Parkinson's (PwP) are also frozen, rigid and trembling on the inside too. Having engaged with very many PwP around the world, I've learned that there are common personality types, and we tend to have shared, overarching themes of internal emotional states. In particular, I've found that many of us can be described as high achievers, but are wracked with self-doubt and guilt on the inside. This finding appears to especially true in the cohort of PwP who eventually end up with a rigidity dominant form of Early Onset Parkinson's Disease.
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The Gut, the Digestive System and Parkinson's Disease, Part 1
Once upon a time, Parkinson's Disease was believed to be a purely neurological problem, caused by dopamine producing cell death in a bean sized part of the brain called the Substantia Nigra. We now know that this neurodegeneration is not necessarily casual, but an effect resulting from more systemic issues, which become worse over a sustained period of years prior to diagnosis. Today, it is widely accepted that problems with the gut and digestive system, including nutritional deficits - due to resulting impaired absorption, are not only integral to PD, but are also likely to play major roles in the true causal factors.
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Meditation and Parkinson's Disease
Pragmatic answers for people with Parkinson's Disease can be gleaned by understanding that one of our fundamental problems is that we're stuck in the Freeze or "Playing Dead" stress mode of our parasympathetic nervous systems. This renders us completely unable to relax, which then necessarily leads to increasing inflammation and toxification of our brains and bodies, with the resulting increase in pain making us ever more stressed - a very vicious circle. Hence re-learning how to relax has to be a principle goal in our recovery: to regain the knowledge of how to switch our "rest & digest" parasympathetic nervous system back on for prolonged periods.
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A Person with Parkinson's Progress with Nutritional Supplements
By Penny Mitchell, Independent Knowledge Worker and Health Reseacher, diagnosed with Early Onset Parkinson's Disease.
"This article is based on a series of posts which I shared in the Parkinson's Disease Fighters United (PDFU) Facebook Group. Gary Sharpe asked me to contribute these as an article, and I am happy to share here too, in case other people with Parkinson's may benefit from my journey and experiences."
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Could Candida be Contributing to my Symptoms of Parkinson's Disease?
One of the more persistent problems I encounter regularly (daily) are episodes of severe brain fog, during which "Gary has left the building", my breathing becomes very shallow and I can only lie down due to my balance going completely. These episodes typically occur in the early evenings and/or after my main meal, when my stomach is full.
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The Overlaps Between Stress and Parkinson's Disease, Part 2
Although the seven stage framework has been developed to describe acutely applied short duration stress, without any reference to PD, the very same framework also describes well the declining state of a PwPs body over time - if the disease is allowed to progress. Therefore, we believe that not only are PwPs permanently stuck in such stress response states, the degree of the stress that we are stuck in also moves through the stages as our situation is allowed to degenerated.
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How A Dog in the Family Helped Me to Understand My Parkinson's Disease
Then something profound and disturbing, but extremely important happened. As I was sitting there, I switched into a deeper "off" state - one in which I zone out completely, lose myself, the brain fog descends, I stiffen up and become rigid, eyes glaze over, I withdraw from the world. hat happened next was extraordinary.
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The Vagus Nerve and Parkinson's Disease
I first discovered the Vagus Nerve (VN) when I was researching how Parkinson's Disease begins in the gut: "Braak's Hypothesis" of the disease states that the problem spreads from its origins in the digestive tract to the brain, using the Vagus Nerve as the conduit. My interest was further piqued when I read that people who had had their VN severed via a vagotomy - a surgical "solution" for stomach ulcers - appeared to have significantly less likelyhood of developing PD.
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Parkinson's Gave Me Gratitude For... Family
My career was cut short by Parkinson's Disease. I lost my Great Love, my life's pursuit and have had to grieve. To change and adapt, to evolve once again or perish. I'm currently lost, at sea, not sure what to do or what I am capable of. Yet Dave has found his Calling, in his family and his career. Very bravely, he formed his own business, Raptorxotics. He has squared his own circle and now his animals, family and work are one.
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