Back in march 2016. I started melting a teaspoon of pure coconut oil in to my hot tea, two or three times a day. I'd heard seemingly miraculous things about this unique natural oil. For me, the results and benefits were immediate and unambiguous. Some time after taking that first drink, I encountered my initial taste of something I'm calling "coconut clarity". I would describe this experience as the clearing of the "brain fog" associated with Parkinson's - that lack of ability to concentrate and sluggish thought processes. But it was also about the clearing of the mists of depression and anxiety. I felt happy. Not manic, not bouncing of the walls, but just happy. I also felt my eyes widen.
Read MoreBat and Ball Therapy for Parkinson's Disease
A simple bat & ball set was just about the first thing I bought when I started exploring toys which could help me unlock movement to start pushing back my Parkinson's Disease symptoms. Once I began to play with them while my PD drugs weren't working - in an "off" state in which I didn't have my much access to movement - it was a complete revelation! The shear degree of movement that suddenly came back in just playing "keep it up" with the bat and ball was a joy, especially in terms of neck movement and core rotation. The fact that while I was doing it, much of my other symptoms (rigidity, unfocused eyes, breathing problems, pain) went away, at least in the moment of play, was massive in re-thinking about my condition, and how to live well with it.
Massageable Magnesium for Relaxing Muscles
For me this intervention has been highly beneficial and really helped me to re-open the pathways to movement we have since developed. I also believe, that having used it daily for over a year now, it has had a cumulative repair effect. However, back at the start, I had been describing to Deb how, when the Parkinson’s stiffness and rigidity of muscles took hold (Bradykinesia), the very worst part was the pain in my shoulders.
Read MoreCaregiving for a Person with Parkinson's Disease
Here at Out-Thinking Parkinson's, it is our mission to help not only People with Parkinson's, but also the people who love and care for them, those who also have, in a very direct way, their own lives touched by the disease.
One of the most valuable contributions we can make, we feel, is simply to express the feelings and thoughts of what it is like to be a person affected by Parkinson's or to care for someone with the disease. We hope this humanization of PD will help others in the same situation come to terms with living with the disease and bring new understandings for the wider community too.
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