The contrast to two years ago is quite stark. Back then I was literally near-Death and dying fast. Then, in my Death Feigning or "off" state, I would be in a much deeper Freeze, with more "rigor mortis" (rigidity). I was literally a zombie. Now I am much more functional - half-alive instead of near-dead - while symptomatic, unless having a really bad day. Even when the drugs switched me on, back then, it was not into full Aliveness, but into another half-dead, unfeeling, empty state - that of permanent Fight-Flight which I had pre-existed all in my life. Moreover, I was taking so many drugs that my movement (and emotions) were uncontrolled, I would go over to a state of dyskinesia which could be worse than the symptoms. Some of the drugs (ropenirole) I was on then actually made my Fight-Flight much, much worse than before.
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Tennis as Therapy for Parkinson's Disease
Tennis seems to be the perfect exercise to help PD - the hand-eye coordination, sudden quick movements, the thinking process used to execute a shot. I now play most days - mainly doubles - for up to three hours. Luckily, our club has a lot of members so there’s never a shortage of people to play with. And the strange, but rewarding part is that my game is getting better! Four years ago I would never have dreamt that I would be winning club competitions and playing matches for my club in the Leicestershire league. I started playing tennis shortly before being diagnosed in my early 50s, enjoying coaching sessions and playing a couple of times a week with my children.
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Neural Exercises and Parkinson's Disease
This article explores how I've found that persistent and targeted "neural exercises" can progressively reduce various symptoms/problems of Parkinson's Disease, through neuroplastic processes. In particular, here I will demonstrate specific neural exercises, and how I have significantly improved my own quality of life through pursuing these persistently over time, via entries from my video diary which are interspersed through the article.
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Busy, Anxious Thoughts and Parkinson's Disease
Many people with PD (PwP), and caregivers will also be well aware of this, often encounter an almost constant chatter of busy thoughts in their own heads. This inner voice can speak in undertones of self-doubt and guilt, but also can be constantly seeking to blame others, marshalling arguments and self-justifications. These thoughts can go round and round like a tape stuck on a loop, and be very difficult to break out of. Indeed, PwP can become irritable when someone seeks to interrupt these thoughts. These anecdotal experiences have now been backed by science too. A recent article in "Nature",
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Mirroring and Rehearsal Therapies for Parkinson's Disease
Movement in humans is a learned behaviour. We learn to move mainly by watching other people go through the motions: we are not born with any innate ability to move around independently. As babies and toddlers, we spend years watching and mimicking our parents, programming our brains with the data they provide. Our brain knows all about walking before we even attempt to walk ourselves, through unconscious observation. Later, we start to get the hang of it through intensive practice, and especially by falling down and making mistakes. Encouragement and supportive instruction from adults help us to keep practising until we have, at last, developed the ability to move independently. But imagine, if as we started to trying to walk, when we fell over on the second attempt, our parents said "oh dear, walking is not for you"! Unfortunately, this is precisely the message people with PD tend to be given.
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Hands, Fingers and Parkinson's Disease
I have done a lot of hand/finger stimulation and experimented to optimize such exercises, in the spirit of Curiosity and Play. I've personally found significant benefit in pursuing this line of research. Indeed, I have managed to recover a lot of my independence and quality of life through hand and finger therapy, and I know just how much of a major part it has played in my own progressive symptom reduction.
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Social Engagement and Parkinson's Disease
Recently, I described how the "Polyvagal Theory" of Dr Stephen Porges not only provides an elegant explanation for Parkinson's Disease and all its symptoms, but also suggests the actions we can take towards healing. Here, we return to this Nervous System (NS) dysfunction perspective of PD, and explore further how it informs us about what we can do to progressively decrease our symptoms.
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Walking, Cycling and Dancing: Ankle Mobilization in Parkinson's Disease
In this article, we explore, with the assistance of my friend and mentor, Cheryl Townsley, Health & Wisdom Coach, how the concepts of stress interruption and nervous system resetting help us understand why walking, cycling and dancing - exercises that inherently involve mobilization of the ankle joints - are so beneficial for People with Parkinson's Disease (PwPs), and why we need to keep practicing these regularly.
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The Overlaps Between Stress and Parkinson's Disease, Part 2
Although the seven stage framework has been developed to describe acutely applied short duration stress, without any reference to PD, the very same framework also describes well the declining state of a PwPs body over time - if the disease is allowed to progress. Therefore, we believe that not only are PwPs permanently stuck in such stress response states, the degree of the stress that we are stuck in also moves through the stages as our situation is allowed to degenerated.
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The Vagus Nerve and Parkinson's Disease
I first discovered the Vagus Nerve (VN) when I was researching how Parkinson's Disease begins in the gut: "Braak's Hypothesis" of the disease states that the problem spreads from its origins in the digestive tract to the brain, using the Vagus Nerve as the conduit. My interest was further piqued when I read that people who had had their VN severed via a vagotomy - a surgical "solution" for stomach ulcers - appeared to have significantly less likelyhood of developing PD.
Read MoreClothing and The Freeze Phenomena in Parkinson's Disease
For People with Parkinson's, there is something very strange about the feedback between our brains/bodies and our immediate environment. The choice of clothes, in particular, can affect symptoms. In this article, I cover why consideration to clothing is an important part of living well with Parkinson's.
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Music-As-Medicine for Parkinson's Disease
Like many, people with Parkinson's, I had completely stopped listening to music some time before diagnosis. This "closing off" or withdrawal from the world of the senses is one of the running themes which I have found in talking to very many people with Parkinson's. But whenever I see people with other neurological conditions like Alzheimer's on the TV, invariably they seem to be existing in silence, and have forgotten the music that one made them come to life. Even quite recently, I could not recall seeing people with such conditions, as shown in the reality of their lives, with music even playing in the background, and certainly never saw them with a personal choice of music, carefully chosen to stir all sorts of memories, being played loud directly in their ears via digital headphones. Thankfully, the profound impact of music on people with neurological illnesses, such as Alzheimer's and Parkinson's is now coming to the fore.
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Playing Card Therapies for Parkinson's Disease
I find I can shuffle, deal, turn, tidy up, halve and gather the pack of cards. It can be quite stiff and difficult but this seems to be one of those things, like playing with my basketball, which allows me to almost always access some movement, this time for my fingers. Indeed, I find this is giving me more and more knowledge of my hands again. You can see me performing this type of exercise at the end of the video below.
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Moving in the Mind and Parkinson's
Certainly, whether I am correct or not that the mind dancing has significantly contributed to this change, clearly there are health and wellness benefits to the gentle movement therapies I have been developing and espouse. I believe that this kind of muscle growth is unusual in Parkinson's, which is often associated with muscle atrophy.
Read MoreA Hop, Skip and Jump Forwards in Parkinson's Recovery
Here I am outside in the Garden. I am using the patterns of the paving slabs (visual stimulus), getting into the groove of the music (audio stimulus) and the feedback with the ground(motor stimulus) to help my brain and body remember the joy of movement.
Read MoreBasket Balls, Music and Reversing Symptoms of Parkinson's
I highly recommend anyone with Parkinson's get a basketball or a netball - the weight and feel matters a lot - and just play, feel, stimulate the muscle memories which are still there. Bounce, balance, catch, throw your way back to moving, every single day. Explore, play, be curious. Practice, but make sure you have fun with it. Enjoy whatever movement you can release, no matter how small. Feel good when you manage to extend your range. Feel good factor = dopamine reward = more movement = more feel good - and that is science fact. In the video I am playing by myself, the therapeutic effects are magnified by the social quotient of playing ball with family members and friends by massive amounts.
Read MoreMovement Recovery with Yo-Yo Stress Balls
Deb had the unique insight that a kind of stress ball (a squeezy, bouncy ball which fit the human hand well) which comes with an attached elastic string and a velcro finger or wrist strap would be hugely beneficial. She based this on our discoveries of how some hand-eye co-ordination movements are relatively easy for people with Parkinsonsim's. She was right!
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Learning How to Walk Again with Parkinson's Disease
.People with Parkinson's tend to shuffle when we "walk". We take very small steps, hardly lifting our feet off the floor at all. We often trip over things and lose our balance. It is part and parcel of that terrible posture, the stooped over "Parkinson's Stance", which many of us develop when we do nothing to correct it. The resulting "Parkinson's Shuffle" is an extremely inefficient way to move around and is so very tiring.
Read MoreParkinson's Disease: A New Hope
In this video, I want to begin to show you what happens when we start to integrate the Out-Thinking Parkinson's strategies into new combined interventions and that, indeed, the whole quickly becomes much greater than the sum of the parts. This, then, represents the Out-Thinking Parkinson's whole. I carried on playing with these ideas for some time after making this video. And then I laughed. I laughed long, loud and deep. It was the type of laugh which hasn't left my lips in over seven years. This is why I decided to call this "A New Hope", because not even PD can withstand the power of Giggles and Glee.
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Ball Game Based Therapies for Parkinson's Disease
A very simple, but extremely effective therapy for movement recovery and progressive symptom reduction in Parkinson's Disease is to incorporate playing with balls of various types, sizes and textures. The hand-eye co-ordination and sensory feedback seems to open up access to movement considerably, presumably because it brings in other pathways and regions of the brain in to help.
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