Margaret Yo My journey truly began with the good news I read in Gary Sharpe and that led me to David Spry and PDFU. Which led me to Wahls and Mischley. I read Glen Pettibone's eBook and was hooked on the idea of healing, of doing it for ourselves. It is a far more attractive prospect than the conventional approach. I am grateful for having stumbled onto this path. While I would wish for a complete and permanent cure, who wouldn't, decreases in symptom expression and reliance on medication, with an increase in functioning, etc, are well worth the effort.Read More
Jackie Potter I have twin girls aged 12, a husband who works long hours, limited family support but so fortunate to have amazing girlfriends who make me laugh (so very important as you have covered in previous articles Gary).
I could not agree with your more about stress affecting medication, movement and pain, i.e. increases the latter and makes the other two ineffective. I have had Parkinson's for 7 years and I have spent a considerable time getting rid of as much stress as I can control (I won't go into detail on the control aspects as we are all very different).
What has helped me and still does on a daily basis:
Doing the things I love, gardening, painting, craftwork - makes me happy;
For relaxation I use calming zen music, yoga, meditation, breathing exercises;
For exercise I cycle, walk and use a weighted hoop for stretching and hooping.
When I am in a stressful situation, I use Faster EFT and I get am immediate response which allows me to move normally again.
Nutrition is an area I am working on and I appreciate all the information you are sharing Gary, it really is keeping me motivated. I see a Neurological Consultant only once a year and a Parkinsons Nurse twice (to increase my meds) so fairly minimal support.
This forum is so helpful to so many. Sharing individual experiences allows us all to tap into information and as individuals we can choose to try various foods, exercise, stress tools etc. etc.
I hope that maybe one day we could organise a gathering of like minded people for a day or even better - a weekend where we could support each other in an environment open to sharing freely experiences and demonstrate many of the tools you have tested and commented on.
If I could turn the clock back Gary 2 years when I raised a lot of money on a charity walk, I would pledge the money to you because you are doing something Now, Today, this Minute and being brave enough to share your research, opinions, videos and be so inspiring.
Thank you, again and please don't give up! I too want to come off meds and I too strongly believe we can heal our bodies with the right ingredients of exercise, foods, practicing calming techniques and definitely surrounding yourself with positive, supportive and happy people. Thank you.
Jahred Boyd Gary, I know many doubt these techniques as helpful but they are a Godsend for me. Hard for me to verbalize and write but I am able to accomplish physical acts that were out of reach for me years ago. About a week ago I delivered a foal from one of my mares in distress all the while my nephew live streaming it to FACEBOOK. When I watched it minutes later i realized I was moving quite normally, movement was fluid and I was successful. Check-out Tim McCormicks video of colt being born. Mom and baby doing great! Really helped my self esteem and confidence in ability to continue to care for my precious animals that keep me going!Read More
Gilbert Paniagua: I'm sure I speak for many, Gary, of how much your posts are appreciated, helpful, and very insightful. I'm especially appreciative that you use yourself as a "human guinea pig" and pass along both the good and bad results. I hope you feel better and I'm glad you're fighting not just for yourself, but for all those afflicted with this terrible disease. I'm honored to fight along with you.Read More
Poldi Dell Thank you so much, I've been treating Parkinson's patients for over thirty years through my dental office. I've seen them through the initial diagnosis until the end, and until my own husband was diagnosed 6 years ago with a very fast progressing type; I had no idea what these folks had to go through just to get to my office. And until I read your post today I did not have an understanding from my Husband's point of view of how he is feeling.I do now and boy let me tell you your expressiveness is overwhelming . Thank you again from the bottom of my heart, we've been married 27 years and because of you I have hope for many more. God Bless.Read More
Alison Hindhaugh: You are an utter giant - keep on moving Gary! We have this challenge in the family so it's totally inspiring to see your research. I basically go along with everything you are discovering - way beyond traditional approaches with mega emphasis on music for neurological stimulation. I totally concur. Keep movingRead More
I find Gary Sharpe's recent posts to be compelling and it caused me to reflect upon my own inflammation history:
2010 - I developed sudden severe discomfort in my urinary tract, basically the constant sensation of needing to pee which was eventually diagnosed as chronic inflammation of the prostate gland, known as prostatitis.
2012 - I started to develop sudden severe abdominal pain after eating certain foods, which has since been identified as IBS.
2014 - my right index finger started twitching and was eventually diagnosed with Parkinson's in December that year.
To me it now seems apparent this is a pattern of progressive inflammation and fits exactly the pattern described by Gary.
I honestly think that this is game changing thinking for at least my sub type of PD.
As a footnote since starting Sinemet in January I've noticed only minimal benefit.Read More
Penny Mitchell Gary! I love this post. Your writing is getting better and better too. This post is very compelling for me. I have been in a very dead and hopeless place lately, and feeling like there was no way out. But this new phase of Out Thinking Parkinson's that you are embarking on here is striking a chord deep inside me. Thank you for your life affirming leadershipRead More
Thanks for your insight Gary. My lovely wife Lynn has Parkinson's but like every other experience we have shared over the last 39 years-We are in this thing together! You sharing your personal experience with me helps me better understand what's going on with Lynn. And sometimes helps us stay centered and somewhat calm when those tough days occur. Thank you my friend.Read More
Marc M Monroe The message of hope through action you convey is absolutely the gold standard of living with Parkinson's. This will also reiterate the core concern of what so many have expressed. Simply move it or lose it. More importantly it is not too late to start.
I believe this concept repeats itself in every successful way each of us has described in our lives. It hurts to begin. It's definitely difficult to follow through.
The impact is as individual as the cocktail of present maladies associated with our branding of this Asinine Ailment. You are a Unique individual Gary Sharpe. You have been the voice of your return from the abyss.
My dear friend David Spry made a similar trek. Others have followed suit. The best resource of information comes from the interactive experience of those who are aware that medical treatment is not the end game.
With this being said. I propose a coalition of advanced support groups with intent on communication between those of us directly with the medical community. I'm not sure where to start. Even if this exists I don't believe it is inclusive of the informed content found within these groups.
What say you?
Good afternoon Dr. Sharpe, I just want to introduce myself. I live in Flint Michigan in the colonies. I'm 68 was diagnosed with PD in February of this year after a 6 month testig period. I am a chiropractor still in practice. I have learned a lot from your video's and book. Hope to stay in touch from time to time. Merry Christmas.Read More
Ian Weinberg: Developer and facilitator of neuro-coaching program. Neurosurgeon in practice • NeuroSurge - neuromodulation
Deb Helfrich In so many ways the story of you and Gary is a great inspiration for me personally. A convergence of all the elements which define the best of our humanity and our intrinsic potential to transcend mediocrity and inherit that sublime place of unconditional sensitivity, clarity and awe. A blessed connection!Read More
Not quite Bowen related posts are going to be the theme of my posts over the next few days, they will be Holistic/Functional medicine related.
As many of you will know, my journey into this arena was sparked with keen interest to find alternative ways in which to help my Dad, who has Parkinson's disease, since 'traditional' methods offered (to put it bluntly) - no hope.
What I have discovered along the way has been illuminating to say the least and it has become my passion.
I do not believe that one way is better than another. What I do believe is that we must work towards an integrated system which offers the very best of all forms of therapy and medicine for all. Because they are all valid, and each of us deserve it.
Today's post is from Dr Gary Sharpe whom I had the pleasure of meeting earlier this year. Having lived with Parkinson's disease for quite a number of years, and finding (like my dad) that traditional medicine was not serving his highest good, he embarked upon a journey, thinking outside the box, to find ways in which to help him get the better of this disease. His journey so far has been a true inspiration and I hope it will inspire others to do the same.
Gary, I am so grateful to you for this particular article. I cannot tell you how enlightening and encouraged I am by your explanation about the effects of stress on PwP. I am in my mid 50's and after 32 years working in various HR and Ops roles at a fairly senior level, I have had my share of stress and always coped with strategies that I even used to train others on. Nearly 6 years living with Parkinsons I react like a sponge to all the things you so clearly listed and somehow it made me feel "normal"! What I mean is that it is just part of the changes or as many refer to 'the journey'. Thank you so much for providing as article that I feel will help me, my husband, family and friends to understand a little more about the changes I am making to de stress my life as much as possible! Not easy with lively twin girls aged 11. I find when they go to school, my husband work, I love the solitude and peaceful time on my own. Trying hard not to become reclusive but it is when I have less and sometimes no symptoms. Sorry for the length of my reply but I just wanted you to know how much your article has impacted on me in a positive and very supportive way. Best wishes.Read More
For me, it was Gary Sharpe's posts on Facebook that first sparked my searching for non-medical answers to help me slow the progression of my Parkinson's symptoms. Looks like the holistic wellness coach and the change of food regime has started me on that path. Thanks Out-Thinking Parkinson's and Dr Gary Sharpe for the continuing information and inspiration.Read More
Dear Gary, you have made amazing progress since we skyped! So happy to see & hear all of it. Could not agree more with so much of what i know keeps us healthy - moving, music, unaltered food & very positive vibes! Kudos & keep it up!
Great info Gary Sharpe!! After my dx I did not immediately start meds as advised by my neuro but I did start seriously researching diet and nutrition thinking that was a more logical first step ( not ruling out meds some day ) and 3 yrs later still no meds and doing remarkably well! Thinking meds alone will solve problems is a big mistake but the right diet and exercise program alongside them can make a world of difference as you have proven. I notice huge differences when I make bad choices. Thank you for your tireless efforts, I love all your posts.