As for many people with young onset forms of Parkinson's Disease, my diagnosis was given the label "Idiopathic". This term, Idiopathic, is used to denote any disease or condition which arises spontaneously or for which the cause is unknown. This diagnosis was wholly unsatisfactory to me, as I'm a person who needs to know the "why" of things.Read More
In this article, I would like to return to this topic, and concentrate this time on that primitive, reptilian branch of the Vagus Nerve, and its potentially central role in Parkinson's Disease.Read More
This article explores how I've found that persistent and targeted "neural exercises" can progressively reduce various symptoms/problems of Parkinson's Disease, through neuroplastic processes. In particular, here I will demonstrate specific neural exercises, and how I have significantly improved my own quality of life through pursuing these persistently over time, via entries from my video diary which are interspersed through the article.Read More
"The single biggest predictor of rate of Parkinson's progression is if you answer true to 'are you lonely'?" This finding by Dr Laurie Mischley, who monitors the progress of symptoms of more than 1500 people with Parkinson's Disease is perhaps one the most tragic aspects of the disease in our modern society, in which we people with PD may find ourselves heading toward this outcome by default. Indeed, I have lost count of the number of people with PD who have said something to me along the lines of "my friends and family have abandoned me/don't visit/lost touch". The negative feedback loops between loneliness and disease progression can be one of the most vicious circles of PD. I speak from personal experience also, because at my lowest point, I too had become very isolated, virtually alone in the house and barely going out.Read More
In this article, we explore a technology which has proven helpful for people with PD, and may work by helping to modulate or quieten these abnormal brainwave patterns.Read More
While most people will be familiar with the external, physically manifest symptoms of PD, very few have a good grasp of these internal, hidden states, and so don't realize that people with Parkinson's (PwP) are also frozen, rigid and trembling on the inside too. Having engaged with very many PwP around the world, I've learned that there are common personality types, and we tend to have shared, overarching themes of internal emotional states. In particular, I've found that many of us can be described as high achievers, but are wracked with self-doubt and guilt on the inside. This finding appears to especially true in the cohort of PwP who eventually end up with a rigidity dominant form of Early Onset Parkinson's Disease.Read More
I recommend anyone interested in Parkinson's Recovery to take a look at Jim Kennedy's research and follow his journey of self-experimentation into NMT. You will find Jim to be very positive and upbeat - no doubt because he has chosen to fill his life with music. You can follow Jim's work via his Facebook Page.Read More
Many people affected by Parkinson's find it not only very difficult to escape from the downward spiral of their minds and bodies, but also from the narrative of hopeless "neurodegenerative disease" they were given at diagnosis, as re-enforced by the media.
So in this article I have collected together a number of resources and case studies which demonstrate unequivocally that inevitable decline is simply not true and that there is always the possibility of hope. These then are the stories of our fellow travelers who've already escaped from both Parkinsonism and the falsehoods of the medical diagnosis narratives, or are helping others to do so.Read More
This video is raw, real and very honest. You will see me break down and cry and release other emotions. This is, I feel now, my most important and special contribution so far. If just one piece of our Out-Thinking Parkinson's journey does survive into posterity, I hope it is this.
Powerful stuff indeed.Read More
For me this intervention has been highly beneficial and really helped me to re-open the pathways to movement we have since developed. I also believe, that having used it daily for over a year now, it has had a cumulative repair effect. However, back at the start, I had been describing to Deb how, when the Parkinson’s stiffness and rigidity of muscles took hold (Bradykinesia), the very worst part was the pain in my shoulders.Read More
This book had been highly recommended to us by several of our readers, and many pointed out the similarities to our Out-Thinking Parkinson's philosophy. Then I read the article "Israeli Healer Treat's Parkinson's Through Talk and Dance" in the Times of Israel about the author. As I read through this article, time and again, I had an overwhelming sense of affinity for what Alex Kerten preaches and, indeed, the parallels between our own independently derived strategies were very clear. I was left feeling a sense of great relief at the vindication I felt after having read it. I called Deb, my Co-Founder, in the middle of her night to talk about it - I simply could not contain myself.Read More
When someone with Parkinson's comes into your life, you have a lot of catching up to do.
The point of this article is to open up your eyes to ways that you can start with what you know and begin to offer some support to someone who has a condition that is very complex and confusing to us laypeople.Read More