Deb had the unique insight that a kind of stress ball (a squeezy, bouncy ball which fit the human hand well) which comes with an attached elastic string and a velcro finger or wrist strap would be hugely beneficial. She based this on our discoveries of how some hand-eye co-ordination movements are relatively easy for people with Parkinsonsim's. She was right!Read More
.People with Parkinson's tend to shuffle when we "walk". We take very small steps, hardly lifting our feet off the floor at all. We often trip over things and lose our balance. It is part and parcel of that terrible posture, the stooped over "Parkinson's Stance", which many of us develop when we do nothing to correct it. The resulting "Parkinson's Shuffle" is an extremely inefficient way to move around and is so very tiring.Read More
In this video, I want to begin to show you what happens when we start to integrate the Out-Thinking Parkinson's strategies into new combined interventions and that, indeed, the whole quickly becomes much greater than the sum of the parts. This, then, represents the Out-Thinking Parkinson's whole. I carried on playing with these ideas for some time after making this video. And then I laughed. I laughed long, loud and deep. It was the type of laugh which hasn't left my lips in over seven years. This is why I decided to call this "A New Hope", because not even PD can withstand the power of Giggles and Glee.Read More
A very simple, but extremely effective therapy for movement recovery and progressive symptom reduction in Parkinson's Disease is to incorporate playing with balls of various types, sizes and textures. The hand-eye co-ordination and sensory feedback seems to open up access to movement considerably, presumably because it brings in other pathways and regions of the brain in to help.Read More
I had an amazing afternoon learning boxing at Rock Steady Boxing Seattle and the best part of the whole process was the support that all the participants gave to each other. I met the owner, Karen Johanson, via LinkedIn, and since I live in Seattle, and have an interest in exploring all avenues to help People with Parkinson's, I sent her an email and asked to meet. She was very welcoming and I offered to show up and volunteer in anyway needed so I could get an in-depth understanding of what a class entailed.Read More
A simple bat & ball set was just about the first thing I bought when I started exploring toys which could help me unlock movement to start pushing back my Parkinson's Disease symptoms. Once I began to play with them while my PD drugs weren't working - in an "off" state in which I didn't have my much access to movement - it was a complete revelation! The shear degree of movement that suddenly came back in just playing "keep it up" with the bat and ball was a joy, especially in terms of neck movement and core rotation. The fact that while I was doing it, much of my other symptoms (rigidity, unfocused eyes, breathing problems, pain) went away, at least in the moment of play, was massive in re-thinking about my condition, and how to live well with it.
Here at Out-Thinking Parkinson's, it is our mission to help not only People with Parkinson's, but also the people who love and care for them, those who also have, in a very direct way, their own lives touched by the disease.
One of the most valuable contributions we can make, we feel, is simply to express the feelings and thoughts of what it is like to be a person affected by Parkinson's or to care for someone with the disease. We hope this humanization of PD will help others in the same situation come to terms with living with the disease and bring new understandings for the wider community too.Read More